"What follows is for those who want to change the world
from what it is to what they believe it should be." 2

Who made disability civil rights law? And how did disability civil rights law, in turn, shape its subjects? This article is about what followed from the enactment of Section 504 of the Rehabilitation Act of 1973, 3 which disability rights advocates understood as their inaugural civil rights law and which became a template for the better-known Americans with Disabilities Act (1990) ("ADA"). 4 Specifically, this article recounts the history of the "Section 504 trainings," a series of government-funded convenings held all over the country in the late 1970s and early 1980s. The Berkeley-based Center for Independent Living ("CIL") ran many of them, through a legal arm that eventually became the Disability Rights Education and Law Center ("DREDF"). In doing so, the organization taught thousands of disabled people to think about Section 504 in a capacious, affirmative way. CIL trainers also used these convenings to try to affect participants' understanding of disability and its role in their lives.

For starters, trainers taught trainees that they were rights-holders. Section 504 was essentially the disability analog to Title VI of the 1964 Civil Rights Act, meaning that it articulated a right to non-discrimination in all federally funded programs and activities. That guarantee implicated vast swaths of activity: approximately 16,000 school systems, 7,000 hospitals, 6,700 nursing homes and home health agencies, 2,600 institutions of higher education, and hundreds of daycare centers, libraries, and state and local governmental agencies. 5 For people with disabilities, Section 504 arguably signaled a stunning change in status—a departure from legal frameworks that had cast them primarily as patients, wards, deviants, and charity cases.

Trainers also taught realistic techniques for vindicating those rights. In the words of one disabled lawyer and organizer from this era, Section 504 was "the first real civil rights law that people [with disabilities] could use to make change," and these trainings showed them how. 6

By the fall of 1980, CIL claimed to have trained over 1,300 "consumer specialists" across the western states, including many people who had no previous connection to CIL or its disability advocacy work. 7 Subsequent trainings in other parts of the country produced thousands more. (CIL conducted many of these trainings, but the effort also involved other organizations, including the Public Interest Law Center of Philadelphia ("PILCOP"), which had a thriving civil rights practice; the American Coalition of Citizens with Disabilities, which eventually took over the PILCOP training program; and the North Carolina-based Barrier Free Environments, led by universal design pioneer Ron Mace.) By the end of the trainings, in 1982, the grand total of trainees was around 25,000, according to one estimate. 8

This article uses archival sources, supplemented with interviews, to try to reconstruct these trainings and evaluate their significance. I drew most heavily on the archival records of CIL, DREDF, and former CIL/DREDF personnel. These records include applications for government funding; communications with federal government handlers; materials distributed to participants; audio recordings of training sessions; lists of trainees; and much more. To get a sense of whether the CIL/DREDF Section 504 trainings were distinct from other Section 504 trainings, I also consulted the records of PILCOP and Barrier Free Environments.

To capture individual perspectives, I drew on the work of the Disability Rights and Independent Living Movement Oral History Project, 9 as well as published oral histories and memoirs, 10 and then supplemented these findings with my own interviews. I interviewed ten people who worked for CIL at the time of the trainings, including eight who were directly involved in the design or administration of the trainings. To gather the federal government perspective on the trainings, I spoke with six mid- and high-level government administrators, two of whom worked at the regional level and observed trainings firsthand. I also interviewed a number of trainees: five chosen at random and two who came to my attention in other ways. 11 This sample is admittedly too small to support broad generalizations and is also biased in other ways: it consists of people who survived decades after their training date, who were relatively easy to track down, and who affirmatively wanted to speak with me. But these conversations nonetheless offer a range of perspectives on what the trainings felt like, and meant, to the people they targeted. I do not quote directly from all of these interviews, but each conversation informed my interpretation of the trainings' significance.

That interpretation has several facets. I argue, first, that these trainings affected political and legal engagement—at the national level, but perhaps even more significantly, at the local level. The individual and collective power of trainees helped initiate change and also prevented backsliding. Second, I argue that the trainings affected how at least some participants thought about themselves, as individuals, as members of communities, and in relation to government. This effect is hard to show, and was clearly not part of every trainee's experience, but appears too frequently in the sources to discount. I conclude on a less sanguine note: although there is much to celebrate in this history, these trainings are implicated in a larger architecture of disability rights enforcement that too often claims the labor of disabled individuals only to perpetuate their exclusion and subordination.

The Birth and Early Life of Section 504

In American legal and political history, the year 1973 is a big one: the Watergate Scandal, the stand-off at Wounded Knee, the abortion decision Roe v. Wade. Less visibly but as importantly, a revolution in disability law was underway. As a rich literature has documented, attention to intellectual disability had been growing for some time, thanks in part to the Kennedy administration's embrace of the issue. Parents groups had also raised the salience of disability, by demanding opportunities for children who had been excluded from school on account of physical and mental differences. Meanwhile, dramatic exposés of institutions and asylums had made the public alert to the kinds of abuses that occurred in those settings, raising questions about residents' legal and human rights. 12

Demographics contributed to this ferment. The late 1960s and early 1970s were a coming-of-age time for thousands of children who contracted and survived polio during the great outbreak of the mid-twentieth century (before the widespread use of the polio vaccine) and who continued to live with the disease's effects. As these survivors matured into adulthood and witnessed the assaults on various axes of exclusion (race, gender), new possibilities opened up before them. 13 Alongside these polio survivors were legions of disabled veterans—the result of decades of mass warfare and life-saving advances in field medicine. In short, people with disabilities were more visible, and more visibly deserving of attention, than ever before.

The Rehabilitation Act of 1973 was both a sign of disability's growing importance and a catalyst for further change. Under the Act, new streams of funds went toward the rehabilitation and vocational training of people with disabilities. Through work and independence, the Act implied, the lucky ones could return to an able-bodied standard of normalcy. 14

Buried at the very end of the Act, however, under the Title "Miscellaneous," was a provision with more radical potential—a guarantee of inclusion and access, with the power of the federal purse behind it. In Section 504, Congress declared that "[n]o otherwise qualified handicapped individual in the United States . . . shall, solely by reason of his handicap, be excluded from participation in, be denied the benefits of, or be subjected to discrimination under any program or activity receiving Federal financial assistance." 15

Phrased differently, Section 504 appeared to do for disability what Title VI of the Civil Rights Act of 1964 (controversially) did for race. These provisions targeted recipients of federal funds and tethered continued receipt of those funds to non-discrimination. At a time when federal money infused nearly every aspect of American governance, these were no small demands. Functionally, these provisions were anti-discrimination mandates for K-12 public schools, almost all colleges and universities, many health care providers, and many state and local agencies, ranging from libraries to transit operations. And although these provisions asked nothing of "private" actors (i.e., individuals and institutions that did not receive federal funds), they had the potential to shift the terrain for everyone, by changing common-sense understandings of what was possible and what was just.

How such a guarantee became law, with such little controversy, is a fascinating story, well told elsewhere. 16 What matters for the purposes of this article is that Section 504 did become law. And then for years, the law went underenforced, tied up inside the administrative state.

Behind the scenes, key federal administrators were sympathetic to the law's intended beneficiaries. Officials in the Department of Health, Education, and Welfare ("HEW")—specifically, that agency's Office for Civil Rights ("OCR")—had successfully claimed the task of writing government-wide regulations, thus protecting the law from less supportive regulators. 17 And by 1975, OCR lawyers had drafted a relatively strong set of regulations, drawing on conversations that OCR had initiated with different disability-based organizations around the country. 18 In general, these regulations foregrounded the disabled individual's interest in inclusion and downplayed cost, 19 even amidst economic stagnation and a rising discourse of austerity. 20 As OCR's John Wodatch put it, "you didn't tell . . . African Americans that it costs too much to integrate their schools. You're not going to tell a disabled person it costs too much to get them a sign language interpreter for their class." 21

The regulations also interpreted Section 504's non-discrimination language to require more than formally equal treatment—that is, not just eradicating policies of formal exclusion but also changing structures and practices that non-disabled people understood as neutral. This kind of interpretation would become integral to U.S. civil rights law, but in 1975, it was not obvious and, in fact, contradicted how some government officials understood the law. 22 Sometimes, OCR's draft regulations indicated, pursuing equality meant treating members of protected groups differently, including by granting accommodations. 23

The progressiveness of these draft regulations contributed to the years'-long delay in their formal release. HEW Secretary David Matthews came and went without taking action. His successor, Joseph Califano, seemed equally uncomfortable. As he later explained, Congress had given disabled people "an unqualified ticket to equality and opportunity," and now his agency was stuck between a "white hat"-wearing "special interest group" and some very sympathetic institutions, including resource-strapped universities and city transit systems. 24

The next chapter of the story is familiar to disability scholars and has become a touchstone of the disability rights movement. Outraged by the delay, disabled organizers and their allies spread the word about Section 504 and the bureaucratic machinery that appeared to be thwarting it. Protests followed, including dramatic sit-ins at HEW offices around the country, a federal lawsuit, and even a demonstration outside Secretary Califano's personal residence. 25 The month-long occupation of HEW's San Francisco office, in particular, is the stuff of legend. 26 On April 28, 1977, Califano signed the regulations.

But the story does not end here—or at least it shouldn't, for if it did, we would fail to see how disabled people participated in the subsequent implementation of the regulations and how that participation, in turn, affected behavior, consciousness, and the concrete meaning of this landmark law.

Contracting Out — to the "Crip Capital of the World"

Although the legislative drafters of Section 504 did not consult many people who identified as disabled, implementation brought a concrete guarantee of inclusion. By June 3, 1978, the regulations dictated, recipients of federal funds were to (1) "evaluate" their own compliance with Section 504, (2) "modify" any policies or practices that did not meet the law's requirements, and (3) remedy any discrimination identified. 27 Further, the regulations required that recipients draw on "the assistance" of people with disabilities (at step 1) and act in "consultation" with them (at steps 2 and 3). 28 In other words, the regulations required involvement of the constituency whose rights were on the line.

Although participation mandates of this kind were hardly exceptional in the 1970s, 29 and although this particular mandate had no real enforcement muscle behind it, it was nonetheless a notable development in the history of U.S. disability policy. The little-known mandate allowed HEW officials to offer hundreds of thousands of dollars in contract money for "consumer trainings" of disabled Americans. 30 (Trainees were "consumers" in the sense that they consumed the federally funded programs at issue. The word choice is also consistent with the rise of a consumption-oriented understanding of citizenship and with preferences of proponents of independent living, who rejected dependency-connoting alternatives.)31 Mere pocket change to the federal government, this money meant much more to the organizations on the receiving end.

One of those organizations was the Center for Independent Living ("CIL"), a renowned hub for disability activism and one of the reasons for Berkeley's designation as "crip capital of the world." 32 Years of labor by the disability community have ensured that CIL's history is well chronicled, especially that part that connects to the University of California, Berkeley in the 1960s. 33 At that juncture, UC Berkeley admitted students with significant physical impairments, but did not provide accessible housing. The official solution was a dorm, of sorts, on one floor of a campus hospital. As the students housed in that hospital advocated for their needs and resisted the power of rehabilitation professionals, they developed a shared consciousness, cutting across their different impairments. The students came to understand themselves not as patients or objects of charity, but as an oppressed political minority, denied their rightful opportunities. Just as federal policymakers incorporated "maximum feasible participation" into the War on Poverty, these students coalesced around the idea that disabled people knew best their own needs and should control their own lives. This advocacy eventually turned into the Physically Disabled Student Program ("PDSP"), which HEW funded as a pilot project in 1970. CIL formally took shape two years later, when it became clear that PDSP could not meet the needs of the broader disability community and when key community members were drawn to a less hierarchical organizational structure (while sharing PDSP's commitment to self-advocacy and non-institutional living). 34

For an entire cohort of leaders, CIL was a place where they developed political consciousness, amassed strategic and technical knowledge, and forged coalitions—often in the course of doing things that were simply necessary for happiness and survival: getting wheelchairs fixed, identifying job opportunities, tracking down accessible housing, learning about non-institutional forms of government support, making friends, meeting lovers. 35 By 1979, CIL's lively storefront operation on Telegraph Avenue served approximately five thousand clients. It also employed 120 people, about half of whom identified as disabled. 36

One byproduct of CIL's day-to-day activities—directly relevant to the Section 504 trainings—was expertise in law and bureaucracy. This came from staff members' countless dealings with federal, state, and local social welfare agencies, both on behalf of themselves and CIL's clients. It also grew from CIL's precarious financial footing, which meant continually applying for government grants and contracts. 37 And it arose from the pleas for justice that regularly came through the door. Eventually someone at CIL was savvy enough to connect that demand to a government-funded employment training project. (Even after the Nixon Administration undermined core elements of the Great Society, there was always money for programs that sounded like work.) By the mid-1970s, CIL paralegals-in-training were helping clients file discrimination complaints and pursue disability-based income support, 38 under the supervision of a lawyer funded by the federal Volunteers in Service to America Program (VISTA)39 (Paul Silver). The addition of one more lawyer in early 1977, Robert ("Bob") Funk, allowed the legal practice to really take off. Shortly thereafter, the initiative acquired its own name: the Disability Law Resource Center ("DLRC"). 40

Funk had arrived at CIL as "sort of a closet cripple," not "very in touch with his disability stuff," according to one close associate. Perhaps because of that, he was most enthusiastic about the legal work that emphasized equality: as citizens, disabled people and non-disabled people were fundamentally the same and so deserved access to the same public goods and services. 41 In August of 1978, when HEW began offering grants to organizations to train consumers in their rights under Section 504, the opportunity aligned perfectly with Funk's vision for DLRC.

From HEW's perspective, DLRC's application was also a good fit. The HEW officials most directly in charge of the 504 trainings understood Section 504 as a civil rights law and they wanted trainings that reflected that view. 42 Practically overnight, it seemed, $350,000 in federal funds (over $1.5 million in 2022 dollars) became available to DLRC's small staff. (Complicating matters, this was one of six government grants and contracts that DLRC won between September 1 and October 1, 1978.)43 Working out of CIL's unheated garage, and later from rented warehouse space across the street, the DLRC team scrambled to figure out how to train the promised six hundred consumers in thirteen Western states. 44

Finding Consumers: "We Beat the Bushes"

"Here we are . . . a bunch of Berkeley hippies, and we don't know anything [about training]," recalled Mary Lou Breslin, when reflecting on the training project that she oversaw. 45 In truth, though, she and her team were not out of their depth. Since September of 1977, DLRC had conducted at least fifteen training sessions for discrete audiences, ranging from state social welfare employees to university administrators. 46 And DLRC lawyers and paralegals were fully capable of mastering the legal-technical aspects of the regulations. The team also benefitted from the expertise of a Berkeley-based consultant named Alan Kalmanoff, who more or less wandered by at just the right time. 47 With ten years of experience training police officers (in how to not violate people's rights) and a borrower's eye for cutting-edge group therapy techniques, Kalmanoff had plenty of ideas about how to pull off a large-scale citizen training. 48

First, though, DLRC had to find people to train—and to find them outside of CIL's niche in Berkeley. Testing the limits of its network, DLRC sent brochures to thousands of individuals and disability-related organizations, ranging from consumer-run advocacy groups like CIL to the so-called "disease groups" that, in other contexts, CIL eschewed—groups like the National Association for Retarded Citizens (now "the Arc"), the Easter Seals, and the National Multiple Sclerosis Society. 49 As Breslin put it, "we beat the bushes." 50

It is unclear how many people expressed interest and, of those, how many DLRC turned away. There was an application, albeit a simple one: It required the candidate to fill out a form, describe a potential 504 compliance problem in their own community, and address their own strengths and weaknesses as a community organizer. 51 There was also a screening interview, suggesting that at least some candidates may have been "screened out." 52

Existing records do, at least, reveal the training group that resulted. Perhaps not surprisingly, it shared some of the characteristic of CIL itself: it was more or less balanced by gender, but majority White, and physical impairments predominated. But there were also signs that DLRC strove for, and achieved, some measure of diversity. For example, the breakdown of the five hundred Midwestern trainees in 1980-81 was reportedly 75 percent "white," 10 percent "Black," 11 percent "Native American," 2 percent "Hispanic," and 2 percent "Miscellaneous." Members of this training group identified with various types of impairment, including mobility impairment (34 percent), hearing impairment (19 percent), visual impairment (8 percent), and mental impairment (3 percent); the rest identified as "other health impaired" (13%) or non-disabled (parents or spouses of a person with a disability; some rehabilitation professionals and educators). 53

The training population was also mixed in its levels of disability awareness and expertise. Some participants, such as California trainee Vernon Cox, came with leadership experience and a history of activism. By the time of his training, Cox had persuaded two cities to make curb cuts; after the training, he founded an independent living center. 54 Trainee Clarinda Valentine, the winner of "Ms. Wheelchair Chicago 1978-79," worked for an HEW regional office at the time of her training. She later made headlines for adopting two children as a single, African-American, paraplegic woman, while maintaining a career as a social service consultant and administrator. 55 New Mexico trainee Mike Phillips had been invited to the 1977 White House Conference for Handicapped Individuals and advised a major city on accessibility issues. 56 Mary-Therese Schweickert, who attended a training in Sunnyvale, California, in 1982, did not consider herself an activist but was acquainted with Section 504 through her work in rehabilitation counseling and disabled student services. 57

By contrast, Minnesota trainee Irene Thom was a novice—open about her schizophrenia diagnosis and energetic in her volunteer activity, but not a known quantity in the world of disability rights. 58 Shelley Bergum participated in a Billings, Montana, training only months after the car accident injury that led her to identify as disabled. 59 Newspapers searches suggest that many trainees shared this more limited level of exposure to Section 504 and to the kind of pan-disability organizing that CIL represented. They were people who identified publicly with some kind of impairment, but if their name made it into the local paper, it was because of something like an unexpected feat of athletic prowess or a cheerful display of "determination," not because they had planted their bodies in front of an inaccessible bus (as some activists famously did at this time). 60

Whether a seasoned veteran or a relative newcomer, however, participants quickly learned that they were part of something bigger. By the end of 1979, the first year of trainings, DLRC had created a regional network of 1,354 trainees. 61 By 1980, a senior CIL staffer estimated that the trainings had reached 5,000 people in the West and Midwest and 8,000 in the rest of the country. 62 By the time the training program came to an end, around 1982, the network of trainees included an estimated 25,000 people. 63

"Maximum Accessibility"

"We're trying to change the world to accommodate us, instead of the other way around," a CIL representative explained in a 1978 video about the organization's approach to advocacy. 64 That philosophy animated the environments that DLRC created at the Section 504 trainings, each of which took place over three-to-four days. 65

DLRC sited the trainings in hotels, sometimes exceptionally nice ones, 66 and DLRC staffers did significant advance work to make sure that these spaces were accessible. At their insistence, toilets gained lift seats, under-sink cabinets were dismantled, and bathroom doors were modified . 67 Lighting was also sometimes adjusted, to avoid triggering trainees with epilepsy. 68 If a pre-arranged hotel could not accommodate the needs of trainees, DLRC would relocate rather than ask trainees to navigate an inadequate space. 69 Detail by detail, DLRC staffers removed the kind of barriers that made physical and mental impairments feel so disabling.

Aware that physical space was only one aspect of accessibility, the DLRC staff also made arrangements to address needs that might arise during the training itself. They hired personal attendants and interpreters, arranged complicated audio-visual equipment, and ensured that someone would be available to repair wheelchairs. 70 They even educated the hotel staff, about everything from the nature of the trainings to the importance of beverage straws. "Tell [the hotel staff] exactly who you are, what the training is about, [and] what 'civil rights' is about," instructed a checklist for the training facilitator; tell them what it means when someone says "leave me to take care of my own needs." 71 The same document included instructions to give hotel meal servers: they were to "speak directly to the disabled person, rather than some able bodied neighbor." 72 If friction developed with hotel staff, the facilitator was to "'oil' the works . . . with praise or money." 73

Taken together, these preparations amounted to promises of "maximum accessibility," in trainer Corbett O'Toole's words, and to dignified, professional treatment. "If you come," the message was, "we will get you out of bed, we will get you up in your chair, we will help you eat your lunch, we will provide sign language interpreters, we will have braille, we will have tape." 74 Further signaling trainees' value, DLRC paid for their transportation and accommodations.

Such attention and recognition was unusual for the time. Two decades after her training, Johnnie Lacy still recalled how "overwhelm[ed]" she felt when she saw the famous Claremont Hotel—"this luxurious kind of place" in California's Berkeley/Oakland hills—"being occupied by a bunch of disabled people." She also remembered how remarkable it felt to be "with a group of [disabled] people who saw themselves as people, not as objects of pity," and who "were not blaming themselves" for the obstacles they faced. 75 This, in a nutshell, was the CIL ethos: it was about combatting images of disabled people as "helpless" and "pathetic" and highlighting the ways in which society made people so, by erecting and maintaining barriers that did not need to be. 76

"You Sure as Hell Better Know What a Leg Bag Is"

As important as creating an obstacle-free environment were DLRC's training methods. One foundational choice—consistent with practices at CIL, but different from some other organizations that received training contracts—was DLRC's insistence on trainers who could be perceived as "peers" or "role models." DLRC laid the groundwork for this in 1978, when it recruited ten disabled individuals to serve as trainers: two who were vision impaired, two who identified as Deaf, and six who had "physical orthopedic disabilities." DLRC recruited an additional thirty-eight trainers in 1979, expanding the pool to include "hidden disabilities" (three trainers) and increasing the number of women (from two to sixteen) and non-White people (from one to nine). 77

The size of the trainer group ensured that a three-person team could lead every training. They were almost all conventionally attractive ("disability pretty"), trainer Corbett O'Toole recalled in 2018, and the most frequently used trainers were largely White. 78 But they did represent a variety of disabling conditions, which guaranteed a cross-disability training experience. 79 The point bears emphasizing because, outside of Berkeley, such experiences were relatively rare. To the extent that trainees were involved with disability activism prior to the training, it was likely within a tighter affinity group. For example, a blind person coalesced with other blind people, a Deaf person with other Deaf people, and so on. Cross-disability organizing remained the exception in the late 1970s, not the norm. 80 By showcasing this style of organizing and by placing people with disabilities in charge, "we modeled . . . the world we wanted to see," trainer Kathy Martinez remembers. 81

Whatever each trainer's disabling condition, that person labored to connect with the trainees. Long, personal introductions (painstakingly rehearsed) were the start. 82 Trainer Cecilia "CeCe" Weeks described the diving accident that broke her neck when she was fourteen years old and the painful adjustments that followed. 83 Trainer Susan Schapiro, paralyzed in a car accident at age sixteen, told a similar story—of suddenly feeling "like a non-person," with no right to the kind of life she had before the accident. 84 Other trainers talked about what it was like to have a disability from birth. Trainer Ann Cupolo, born with diastrophic dwarfism, described being segregated all her young life with other children with disabilities and how that affected her aspirations and self-concept. Even after she made it to college, she explained, the only career she could imagine for herself was being a piano teacher who worked inside her own home. 85 Gail Rinne, a "low vision" trainer from the South, talked about being encouraged to pass as non-disabled whenever possible. If she couldn't see something, she was supposed to "pretend [she] could," even if that meant not using the restroom when she felt the urge and flunking classes where she couldn't see the blackboard. 86

Migrating to Berkeley, in many of these narratives, was transformative. Only when she landed in Berkeley and started working for CIL, Gail Rinne explained, did she stop feeling like a "woman without a country." 87 Berkeley also changed interpretations of past experiences. It was unjust, Susan Schapiro realized, when she felt compelled to attend a high school thirty miles away from her home rather than going to her neighborhood school, where her access to classes would have depended on the school's "half-hearted[]" offer to have the janitor carry her up and down the stairs every day. 88 It was unfair, Ann Cupolo learned, for her high school to deem her "too short" to attend, unless she used a wheelchair (something she did not need at the time). 89 Similarly, Rinne gained a new language for describing why she felt wronged, back in North Carolina, when an employer fired her from a cashier job after noticing a reference on her W-2 to blindness. In Berkeley, she explained, she learned that the civil rights movement applied to her, too. 90

These narratives had purpose. Implicit in CIL's long-standing commitment to peer counseling was that if trainees could see themselves in the trainers—all of whom projected power, confidence, and satisfaction—they would develop a more positive self-image and become better able to effectuate political change in their own contexts. 91 A more pragmatic rationale was that it helped generate trainee buy-in. Consultant Alan Kalmanoff, who helped design the training program, put it this way: "if you are going to teach me about my civil rights as a disabled person, you sure as hell better know what a leg bag is." Without shared experience, he believed, trainees were less likely to "to see that the things you are bringing to the party are things that they can dance with." 92

How to Wield a Right

The main thing trainers "brought to the party" were rights, along with the posture that accompanied that concept. In the words of a 1979 report, the grounding of the training project was "the fundamental notion that disabled persons are citizens with full rights to equal opportunity." 93

Fittingly, the substantive part of the training opened with the history of Section 504—told through a particular lens. Stated in the simple language of the training curriculum, "Section 504 is part of the long history of civil rights legislation in America." That history dated back to the Bill of Rights and also included the Emancipation Proclamation, the Reconstruction Amendments, and Brown v. Board of Education (1954). 94 The message was not subtle: disabled people in the late twentieth century were an oppressed minority, not unlike enslaved people and their descendants. But finally, legal recognition and remediation had arrived.

Looking back on this framing, there is much to critique. Most obviously, by characterizing the struggle for racial equality as an antecedent or an analogy, the training implied an un-raced (or White) disabled population at last getting a taste of what Black Americans (impliedly non-disabled) had already won. From the DLRC perspective, however, this framing was helpful, for it infused the lessons that followed with a sense of righteousness and a tempered optimism.

Those subsequent lessons included an impressive amount of "black letter law," explained in colloquial style. Trainers were especially keen to alert trainees to key words and phrases in the otherwise dense regulations and to flag places where precise meaning remained up for grabs. For example, when the regulations described giving "handicapped persons equal opportunity to obtain the same result" as others, did that mean it was acceptable to send a disabled person to the most unattractive or low-status bathroom, located in the far recesses of the building? 95 Institutions would try that, trainers warned, and trainees must resist. The same lesson applied to the provision mandating that services be given in the "most integrated setting appropriate to the person's needs." People with disabilities needed to claim that word "appropriate," the trainers emphasized. "We decide what is appropriate to our needs." 96

Simultaneously, trainers sought to deny the regulations a mystical or intimidating quality. "If you don't understand [something in the law] the first time we say it, it's because none of us understood it the first time we said it or read it," assured trainer Gaile Rinne in a 1980 training. She encouraged trainees to think of law as just "Washington's verbal diarrhea that we can use and work with." 97 "[J]ust because this is the law doesn't mean that you have to be a lawyer to understand it," emphasized trainer (and former trainee) Shelley Bergum to another group. Most of the trainers, after all, weren't lawyers, and yet the government trusted them to explain it. 98

To that end, trainers budgeted much more time—21.5 of 24 hours—to skills and strategies for putting the law into action. 99 As part of the training, trainees filled out a worksheet in which they identified a HEW-funded recipient (e.g., a school, hospital, or social services program), described a 504-related problem, articulated a desired solution, and answered questions relating to strategy. 100 Later, small groups worked through one of these scenarios—for example, that of a county health clinic with no interpreters available and no electromechanical devices (such as a teletypewriter, or TTY) for allowing non-speaking clients to communicate. Drawing on the training materials and their own experiences, trainees discussed and debated possible strategies. 101 For their part, trainers interjected observations, but offered no answers, signaling that trainees knew better than outsiders how particular strategies would play out in their own communities. The only thing that trainers did insist on was that trainees, first, know their rights, and second, act like a person who had them.

One right was participatory. Referencing the "self-evaluation" language in the regulations that birthed the trainings, the 1979 training curriculum put it this way: "[Y]ou have the right to assist in making physical and policy changes to ensure continued 504 compliance." 102 Or, as trainer Gaile Rinne declared in a 1980 training session in Chicago, "This is your law. This is our law"; "[w]e are the people who make the law effective . . . ." 103 Realistically, echoed Shelley Bergum to a group of trainees in Cincinnati, Ohio, "nondisabled Washington bureaucrats . . . have very little idea" of what Section 504 means. "[T]hat's where we come in"—to explain how the law should be interpreted. 104

A second right was non-discrimination, which in practice could mean a right to accommodation. As trainers explained it, Section 504 gave disabled people the right to access all the same services and opportunities that nondisabled people enjoyed (or at least, all the services and opportunities that the federal government subsidized). This was not a guarantee of identical results or even identical treatment, trainers cautioned. But it nonetheless could have many implications, from the height of a doctor's examining table to the location of an accessible bathroom. "Don't let your employer decide what is a reasonable accommodation," emphasized trainer Steve McLelland, "You know best . . . what your needs are." 105

What trainers emphasized most of all, however, was not the specific content of rights but the need for the trainees to behave as rights-holders. Trainers called this "the rights bearing attitude"—and it was "the key to everything," in one trainer's words. 106 It provided motivation. It was armor against self-defeat. It was the foundation of effective communication. 107 "This isn't just a question that we're asking you for something," one trainer explained, during a role play exercise where she was portraying the "disabled consumer." "It's our right to have it." 108 "Ninety percent of [the trainings] was really teaching" that point, trainer Corbett O'Toole later recalled. 109

A "rights bearing attitude" was not synonymous with a "litigious attitude"—an important distinction. The trainings characterized judicial proceedings as essentially one option, often of last resort. As CIL deputy director Judith Heumann later explained, DLRC wanted trainees to know how to file legal complaints but also how to "prevent[] complaints from having to be filed," by wielding other tools of persuasion. 110 It was no coincidence that entire pages in the training curriculum came from the burgeoning world of alternative dispute resolution111 and that filing a lawsuit was not one of the exercises the trainees practiced. 112 As trainer Corbett O'Toole later recalled, "we basically said to people, 'You have rights. Go use them.' And they found ways that made sense for their communities and for themselves, individually, to [do so]." 113

Going Home – and Getting Organized

When participants left the trainings, they were different, or at least differently equipped. DLRC's "Consumer Training Curriculum" distilled for them the lessons of the previous days. A "technical reference manual," titled "The Consumer Guide to Section 504," used layperson's language to explain the ins and outs of Section 504. 114 DLRC also added trainees to the distribution list for its newsletter, Access, which tracked doctrinal and regulatory developments. 115

The message of these materials was, first, that trainees now had expert knowledge and that they should put it to use. Indeed, one of the reasons for treating trainees so professionally was to communicate this expectation. As trainer Corbett O'Toole explained it: "you're going to walk out of here being able to do your job"—and yes, trainees now had a "job," even if they had been denied access to paying jobs for their entire lives. 116 Second, DLRC trainers told trainees that now they were the trainers. Using these materials, trainees should go out and educate others. 117

Trainees also left with the assurance that they would not have to go it alone in attempting to enforce Section 504. A hotline, staffed by specialists at CIL, was available for technical assistance. DLRC also offered on-site consultations, should a complex local problem arise. 118 DLRC further institutionalized this support service in 1979, when it began funding a small number of "Technical Assistance Satellite Units" throughout the country. 119 Some of these units affirmatively reached out to all trainees in their designated area. 120 Finally, to help trainees develop their own networks, DLRC gave them a list of all the other advocates DLRC had already trained. 121

This last resource contributed to a final, less tangible, takeaway: what participant and CIL staffer Linda Gill called "the hidden agenda." In Gill's words, it was about getting "organize[d]," "becom[ing] radical," and learning to "coalesce with other folks with other disabilities." 122 In reality, this agenda was not hidden at all (and, in fact, had the approval of top federal government administrators). 123 Over the course of these sessions, trainers encouraged trainees to get to know each other, to share useful information, and to recognize their commonalities. Trainers talked frequently about the broader movement, in ways that encouraged trainees to feel part of it and build it out at the local level. 124 "In the end," recalls Mary Lou Breslin, the trainings "became a community organizing tool really. I mean that is what it really was." 125

Legacy I: Political and Legal Engagement

Breslin's comment invites questions about consequences. One consequence, according to some people involved with the trainings, was the creation of a nationwide, grassroots network for DLRC, which during this period became the Disability Rights Education and Defense Fund (DREDF) and formally separated from CIL. Over the next decade, DREDF would famously combat executive branch efforts to defang Section 504 and also help spur the enactment of the ADA.

There is ample evidence that DREDF recognized trainees as a political resource and attempted to mobilize them. In 1981, when President Ronald Reagan's task force on "regulatory relief" began targeting Section 504, and when new draft guidelines made cost the crucial determinant of Section 504's protection for civil rights, 126 DREDF sounded the alarm. The revised guidelines "DESTROY OUR RIGHTS AS CITIZENS TO EQUAL OPPORTUNITY AND EQUAL TREATMENT," DREDF warned its network. 127 "If you don't [act]," read one "action alert," "no one else will." 128

DREDF's "hidden army" responded by bombarding the task force with angry correspondence—some 40,000 letters, according to one common estimate—until Section 504 was taken off the de-regulatory agenda. 129 That "hidden army," according to Breslin, was the 504 training network. 130

DREDF called on that network again in the mid-1980s, as momentum built for a civil rights bill that would reach beyond the public sector, to private employers and businesses, 131 but in this instance, it is harder to say whether the 504 network responded or was influential. Interviewed ten years after the enactment of the ADA, Breslin had "no clue" whether DREDF's pleas for vigil-holding and letter-writing had a direct influence on lawmakers. 132

National policy landmarks are not the only consequences worth caring about, however. Evidence suggests that the 504 trainings created a broader, more diffuse legacy of political engagement. According to Deborah Kaplan, a lawyer who began her career at CIL and led some of the 504 trainings in the eastern U.S., 133 those sessions created disability leaders and infused the movement with new people. The result was "a lot of activism and energy and new coalitions and new organizations." 134 Trainer Corbett O'Toole has also characterized the trainings as motivating and energizing, even as they confirmed how "absolutely pervasive" discrimination was. 135

After the trainings, DLRC records suggest, many trainees did press for change in their communities. In October 1979, after the first year of trainings, DLRC drew on written surveys and follow-up telephone calls to tally 258 "individual projects" and 89 "team projects," in areas ranging from health to post-secondary education. 136 DLRC documented "changes in recipient behavior" in 113 cases. 137 Summarizing the activities of the consumer specialists trained in the Western region in Fiscal Year 1979-80, DLRC reported 41 instances in which trainees participated in a recipient's "self-evaluation" or "transition planning"; 34 attainments of accommodations, adjustments, or access; 7 successes in eliminating discriminatory practices by health care providers; and 5 instances in which trainees influenced the design, construction, and alteration of facilities. 138

Other DLRC records offer concrete examples. In Oak Brook, Illinois, a suburb of Chicago, a trainee reportedly initiated a conversation with the Postmaster regarding treatment of Deaf employees. One result was a "mini-training for Postal Service managers in that district." 139 In Kansas, a 1979 trainee filed a class action lawsuit on behalf of her son, who had epilepsy, and similarly situated school-age children in the state. Other trainees supported her, by forming an ad hoc committee to educate other parents about their children's civil rights. 140 In Gibson County, Indiana, a trainee organized a training of the staff of the local rehabilitation center on how to spot a violation of Section 504 and thereby better help their clients. 141

DLRC also document a range of activities that did not produce a "quantifiable change in recipient behavior" but that nonetheless evidenced grassroots organizing. For example, the consumer specialists trained in the Western region in Fiscal Year 1979-80 reported 517 instances of "coalition building"; 537 negotiations with recipient agencies; 501 reports of public speaking; 335 reports of consumer training work; and 137 instances of participation in media events. Trainees sent in an additional 103 reports of joining committees or boards. 142 After the Midwest trainings, a group of Indiana trainees formed an organization called "Deafness and 504" and began working on getting teletypewriters (TTYs) installed in fire departments, police stations, and other public offices. Trainees from Ohio, organizing under the name "the Ohio Deaf 504 Doers," did something similar. 143

Newspaper accounts lend credence to DLRC's data, while falling short of proving that the trainings caused any particular incident of activism. For example, in 1981, within two years of attending a training in Montana, Vivian Crabtree applied for a position with the public library system and sued when she was not hired. (Crabtree, according to newspapers, was "legally blind but [could] read with a magnifier"; she sought a position that involved creating audio recordings of books.) Crabtree ultimately won her case—which made it all the way to the Montana Supreme Court—after citing a state law that gave an "absolute preference" to veterans and disabled civilians. 144 Similarly, trainee Barbara Gray-Pendleton made headlines in New Mexico the year after her training: In her role as Administrator of Southwest New Mexico Services to Handicapped Children and Adults, she "staged two demonstrations" to protest the state's proposed cuts to her organization's funding. (She succeeded in preserving the funding.)145 Neither example of activism directly implicated Section 504, but both advanced the trainings' vision of an educated disabled citizenry demanding accommodation and support.

Whether such activism was commonplace or rare is harder to gauge. My interviews with seven surviving trainees suggest that they felt only loosely connected, if at all, to DREDF's subsequent organizing work. But in the months and years after their trainings, some of them drew on their knowledge of Section 504 to effect change in their local contexts.

For Shirley Jarman, a nondisabled trainee who worked in disabled student services at a university at the time of her training and was a parent advocate for a child with polio, the training and others like it gave her greater confidence when her employer balked at students' access requests. She handled many disagreements informally, and once applied for outside funds to solve an access problems (lack of an elevator in the Student Union), but she was also willing to tell colleagues, "the law's the law." If cost was the stated concern, she expressed her hope that the campus "find [the money] before a student files a lawsuit." 146

For one New Mexico trainee, a low-vision public school teacher at the time of her 1979 training, a Section 504 complaint against her school system was a "direct result" of what she learned from DLRC. Thereafter, legal complaints were a regular part of her repertoire—a tool she felt confident using even when lawyers were unsupportive. She also spread her knowledge to local outposts, such as an independent living center in a major city in the southwest. "[I]f we just have the law in one little jar, it doesn't do any good," she told me. "You have to spread it around." At age 71, she still had a binder of material from her Section 504 training. 147

Such anecdotes are a necessary complement to existing scholarly analyses of Section 504, which, in their focus on lawsuits and administrative complaints, take a dim view of the law's efficacy. 148 To fixate on these formal processes is to overlook the kind of changes that occurred at the ground level, sometimes without significant resistance: "putting in a Dixie cup dispenser" near a drinking fountain or "getting a class moved" from one building to another, to borrow examples from an interview with an HEW administrator149 ; weighing people with disabilities inside a doctor's office, on a scale designed for humans, rather than on an industrial scale in the basement, to borrow an example from the life of DLRC trainer Ann Cupolo. 150 Such changes mattered to the people who requested them. They occurred, trainee Clarinda Valentine recalls, because formerly closed minds "open[ed]" "to new possibilities." 151 And in some instances, the Section 504 trainings catalyzed the openings.

Legacy II: Attitudes and Worldviews

In their qualitative study of Americans with disabilities after the enactment of the ADA, sociologists David Engel and Frank Munger conclude that new legal rights do not necessarily change the legal consciousness of ostensible rights holders, nor do such rights necessarily animate their sense of identity. 152 For some of the disabled trainees that I interviewed, that thesis holds. In the words of an Idaho trainee with cerebral palsy who was in her twenties at the time of her training, "life changing it was not." This trainee remained active around disability issues, some years more robustly than others, but attributed no particular significance to Section 504 or the training she received (and, indeed, seems to have found the CIL approach too dogmatic for her tastes). 153

For other trainees, however, Section 504—or rather, the trainings' interpretation of Section 504—had a noticeable effect. Interviewed twenty years after her training (in Oakland), Johnnie Lacy had this to say, when asked how she felt in the immediate aftermath: "Well, I felt fired up with a new attitude. . . . I left with that sense of righteous indignation that, How dare people look at me in a way that made me feel as though I was less than they as a result of my . . . disability." At that time, Lacy recalled, she had already "mastered that righteous indignation of a black person [and] a poor person," but when it came to her disability, this feeling was new. 154 The low-vision New Mexico trainee that I interviewed also described her training as inspiring—so much so that she moved to Oakland (closer to CIL) and began contemplating a career in law. She associates the training with becoming more assertive and confident. 155

Non-disabled staff members had similar recollections—of seeing people "come politically alive" before their eyes, as wheelchair technician Charles Grimes put it. "It was a reenactment of the kind of consciousness building that happened in the 504 demonstration in '77," he recalled, when interviewed years later, "over and over and over again, for almost every community we went to." 156 Lynette Taylor, who attended some trainings as an interpreter for Deaf trainers and trainees, agreed, while underscoring the more painful aspects of the transformation. In her experience, the trainings prompted people to recall times when they had been isolated, confined, and misdiagnosed, and encouraged them to "reframe" these incidents. Incidents and relationships that they had previously considered acceptable or even benign suddenly had a different cast. "I think with the realization that you have rights, all of a sudden what hits you is all the ways in which you haven't," Taylor reflected, "And so there's a profound sadness about that." 157

Taylor later felt some of that sadness in her own life, as she fought for the rights of her Deaf mother. Her mother was in a nursing home, diagnosed with cancer, and had no ability to communicate with her caretakers. ("My mother thinks—You told her she had leukemia. She thinks she has anemia. So no, it's not working, guys.") Using her knowledge of Section 504, Taylor convinced the facility to provide her mother an interpreter. (Prior to Section 504, a family member or privately-hired interpreter would have been the norm.) When the facility later took away the interpreter, citing cost, Taylor went through the motions again. And again. Taylor's mother died in that nursing home, where, to the end, she was unable to give or receive basic information about her needs. 158

Taylor's story showcases how the trainings could reveal injustices, hitherto tolerated or unacknowledged. In some trainees, the trainings also seemed to inspire a sense that injustices were redressable and that they could do something to alter their place in the world. "I think that for the most part," Taylor recalled, "the audiences were recognizing themselves in someone else or the potential to be something other than they thought they could be. . . . You could feel that in the room." The "empowerment" message was "a game changer in our community," agreed Kathy Martinez, who attended a training as a young adult, became a trainer herself, and eventually became an assistant secretary in the U.S. Department of Labor. The trainings took the sensibility of a "little elite group" in Berkeley and spread it nationwide. 159

From her vantage point at DREDF, Mary Lou Breslin also observed the longer-term "transformative" potential of the trainings. "Years later I would run into people on the metro in D.C. or New York, and I wouldn't remember them from Adam and they would say that I attended your training," Breslin marveled in 2018. 160 (Lawyer Frank Laski, who helped organize PILCOP's Section 504 trainings, has similar recollections: "for years and years afterwards, I would go places and people would say, you know, I was there for the training and I remember . . . ." 161 ) "I think for some people it was the first opening of the door," Breslin reflected. 162 Specifically, Breslin connected the trainings with people's willingness to frame disability-related problems as matters of civil rights and, moreover, to see disability in a structural or social way rather than as an individual deficit. The problem became "the inaccessible city hall, not that I can't walk up the steps." 163 That framing would not have been intuitive, Breslin remarked, "if we hadn't been out there spreading this gospel," including through the Section 504 trainings. 164

* * *

"When those who have been considered 'different' become the source of information about a critical but previously suppressed perspective on the legal issues affecting them," legal theorist Martha Minow has observed, it becomes possible to question "the social and institutional patterns that ignore this perspective." The status quo loses its "natural and inevitable" appearance, to reveal instead a set of choices. Choices can be questioned. Choices "can be remade." 165

The Section 504 trainings seem to have invited such remakings. Did they succeed? When trainees took their knowledge into their communities and articulated their needs, did the people they approached recognize and question their own choices? Did they revise "social and institutional patterns"? Or did they simply make one-off "exceptions" for individuals who presented as particularly deserving or innocuous? 166 The limitations of my sources counsel against strong conclusions, but I hope this article inspires others to search out answers. So, too, must we interrogate the re-framing that Breslin and others describe. To the extent that disabled people embraced that new frame, what kinds of possibilities and futures became visible? Were other possibilities and futures obscured? These intangible legacies of Section 504 are as important as any more measurable consequence.

As we await firmer answers, what this article can conclude is that the Section 504 trainings are an artifact of a vital moment in U.S. disability history, one that fundamentally shaped everything that followed. It was a moment when rights were still the "coin of the realm," 167 a way for government officials to both communicate value and bargain for the kind of behavior they wished to see. Likewise, it was a time when inviting citizens to help enforce their own civil rights seemed like a progressive, democratic development (if also a way of keeping federal enforcement bureaucracy relatively lean). 168 Throughout society, meanwhile, traditional boundaries of exclusion seemed to be eroding. In this political and institutional context, the people who funded, designed, and administered the Section 504 trainings believed they were making great strides. They understood the forces arrayed against their vision, but, inspired by other movements for equality, they imagined their work could lead to a more inclusive society.

With the distance of time, it is also clear that this approach was not adequate to the task (even if it had other underappreciated benefits). During and after the trainings, high-profile court cases illuminated Section 504's limitations: its protection not of every disabled person, but only those "otherwise qualified" for the relevant benefit or program; its concession that not all accommodations were "reasonable"; its acknowledgment that even reasonable accommodations might impose too much of a "hardship" on alleged discriminators to be legally required. Drawing on Section 504's post-enactment interpretations, policymakers built these same limitations into the ADA. 169 What is left is a legal framework that aspires for inclusion, speaks in the alluring register of rights, and has undoubtedly done good in the world, but that has nonetheless proven compatible with inaccessible public transit systems, persistent underemployment, and the funneling of people with disabilities into dangerous congregate care settings—to reference just a few indices of exclusion and subordination. The existing legal framework also continues to rely on disabled people's labor to enforce the law, in a manner that might be called participatory but might also be called exploitative. Although various state and federal agencies have responsibility for enforcing disability civil rights laws, it is often disabled people themselves who identify problems, propose solutions, and seek to hold rights violators to account—generally without government subsidies or support. 170 This is a form of administrative labor, as law professor Elizabeth Emens has argued, albeit one that is undervalued and underrecognized. 171 Amidst narratives of abusive litigation, it also exposes disabled people to dangerous accusations of greed, selfishness, and fraud. 172

Four decades after the end of the Section 504 trainings, disability civil rights laws continue to offer opportunities for individuals to "change the world . . . to what they believe it should be." These laws helped trainee Denise Sherer Jacobson go from being a "prisoner in [her] own house," unable to get a job and afraid of institutionalization, to a nationally known author. 173 They helped trainee Clarinda Valentine adopt and raise two children, defying stereotypes about the parental fitness of wheelchair users. 174 Future possibilities abound. So, too, however, have these laws perpetuated the world as "it is." Our histories must reflect both realities.

Bibliography

Archival and Oral History Collections

  • Deborah Kaplan papers, Banc MSS 99/369, Bancroft Library, University of California, Berkeley.
  • Disability Rights and Independent Living Movement Oral History Project, Regional Oral History Office, Bancroft Library, University of California, Berkeley
  • Disability Rights Education and Defense Fund sound recordings, Phonotape 3524 C, Bancroft Library, University of California, Berkeley.
  • Disability Rights Leadership Archive video collection, Motion Picture 942 D, Bancroft Library, University of California, Berkeley.
  • Public Interest Law Center of Philadelphia Records, Special Collections Research Center, Temple University, Philadelphia, Pa.
  • Records of the Disability Rights Education and Defense Fund, Banc Mss 99/145 cz, Bancroft Library, University of California, Berkeley.
  • Ron Mace Papers, MC 00260, Special Collections Research Center, North Carolina State University, Raleigh, N.C.

Books, Articles, and Other Secondary Sources

  • Bagenstos, Samuel R. "The Perversity of Limited Civil Rights Remedies: The Case of 'Abusive' ADA Litigation." UCLA Law Review 54, 1 (2006): 1-36.
  • Berkowitz, Edward and Kim McQuaid. Creating the Welfare State: The Political Economy of Twentieth-Century Reform. New York: Praeger, 1980.
  • Burke, Thomas F. and Jeb Barnes. "The Civil Rights Template and the Americans with Disabilities Act: A Sociolegal Perspective on the Promise and Limits of Individual Rights." In The Rights Revolution Revisited : Institutional Perspectives on the Private Enforcement of Civil Rights in the U.S., edited by Lynda G. Dodd. New York: Cambridge University Press, 2018.
  • Califano, Jr., Joseph A. Governing America: An Insider's Report from the White House and the Cabinet. New York: Simon & Schuster, 1981.
  • Carey, Alison C. On the Margins of Citizenship: Intellectual Disability and Civil Rights in Twentieth-Century America. Philadelphia, Pa.: Temple University Press, 2009.
  • Chen, Ming Hsu. "Language Rights as a Legacy of the Civil Rights Act." SMU Law Review 67 (2014): 247-56.
  • Cohen, Lizabeth. A Consumer's Republic: The Politics of Mass Consumption in Postwar America. New York: Alfred A. Knopf, 2003.
  • Colker, Ruth. "The ADA's Journey Through Congress." Wake Forest Law Review 39 (2004): 1-48.
  • ______. "The Death of Section 504." University of Michigan Journal of Law Reform 35 (2001): 219-61.
  • Davies, Gareth. "The Great Society After Johnson: The Case of Bilingual Education." Journal of American History 88, no. 4 (2002): 1405-29. https://doi.org/10.2307/2700603
  • Davis, Lennard J. Enabling Acts: The Hidden Story of How the Americans with Disabilities Act Gave the Largest US Minority Its Rights. Boston: Beacon Press, 2015.
  • DeJong, Gerben. "Independent Living: From Social Movement to Analytic Paradigm." Archives of Physical and Medical Rehabilitation 60 (Oct. 1979): 435-46.
  • Dorfman, Doron. "Fear of the Disability Con: Perceptions of Fraud and Special Rights Discourse." Law & Society Review 53, no. 4 (2019): 1051-91. https://doi.org/10.1111/lasr.12437
  • Emens, Elizabeth F. "Disability Admin: The Invisible Cost of Being Disabled." Minnesota Law Review 105 (2021): 2329-77. https://minnesotalawreview.org/article/disability-admin-the-invisible-costs-of-being-disabled/
  • Engebretson, Mark F. "Administrative Action to End Discrimination Based on Handicap: HEW's Section 504 Regulation." Harvard Journal on Legislation 16, no. 1 (1979): 59-89.
  • Engel, David M. and Frank W. Munger. Rights of Inclusion: Law and Identity in the Life Stories of Americans with Disabilities. Chicago: University of Chicago Press, 2003. https://doi.org/10.7208/chicago/9780226208343.001.0001
  • Farhang, Sean. The Litigation State: Public Regulation and Private Lawsuits in the U.S. Princeton, N.J.: Princeton University Press, 2010. https://doi.org/10.1515/9781400836789
  • Feldblum, Chai R. "The (R)evolution of Physical Disability Anti-discrimination Law: 1976-1996." Mental and Physical Disability Law Reporter 20, no. 5 (1996): 613-21.
  • Finger, Anne. Elegy for a Disease: A Personal and Cultural History of Polio. New York: St. Martin's Press, 2006.
  • Gerston, Larry N., Cynthia Fraleigh, and Robert Schwab. The Deregulated Society. Pacific Grove, Ca.: Brooks/Cole Publishing Co., 1988.
  • Hensler, Deborah S. "Our Courts, Ourselves: How the Alternative Dispute Resolution Movement is Re-shaping Our Legal System." Penn State Law Review 108 (2003): 165-97.
  • Independent Living Research Utilization Project. "Independent Living: Six Model Programs." 1978. http://www.ilru.org/independent-living-six-model-programs
  • Jennings, Audra. Out of the Horrors of War: Disability Politics in World War II America. Philadelphia: University of Pennsylvania Press, 2016. https://doi.org/10.9783/9780812293197
  • Johnson, Roberta Ann. "Mobilizing the Disabled." In Social Movements of the Sixties and Seventies, edited by Jo Freeman, 25-46. New York: Longman, Inc., 1983.
  • Katzmann, Robert A. Institutional Disability: The Saga of Transportation Policy for the Disabled. Washington, D.C.: Brookings Institution Press, 1986.
  • Kornbluh, Felicia. "Disability, Antiprofessionalism, and Civil Rights: The National Federation of the Blind and the 'Right to Organize' in the 1950s." Journal of American History 97, no. 4 (2011): 1023-47. https://doi.org/10.1093/jahist/jaq123
  • Matelski, Elizabeth M. Reducing Bodies: Mass Culture and the Female Figure in Postwar America. New York: Routledge, 2017. https://doi.org/10.4324/9781315545660
  • Minow, Martha. Making All the Difference: Inclusion, Exclusion, and American Law. Ithaca, N.Y.: Cornell University Press, 1990.
  • Mittelstadt, Jennifer. From Welfare to Workfare: The Unintended Consequences of Liberal Reform. Chapel Hill: University of North Carolina Press, 2005.
  • Ortiz, Naomi. "Dear Ally." 2014. https://www.naomiortiz.com/blog/dear-ally
  • OToole, Corbett Joan. Fading Scars: My Queer Disability History. Second edition. Berkeley, Ca.: Reclamation Press, 2019.
  • Parsons, Anne E. From Asylum to Prison: Deinstitutionalization and the Rise of Mass Incarceration after 1945. Chapel Hill: University of North Carolina Press, 2018. https://doi.org/10.5149/northcarolina/9781469640631.001.0001
  • Patterson, Lindsay. "Points of Access: Rehabilitation Centers, Summer Camps, and Student Life in the Making of Disability Activism, 1960–1973." Journal of Social History 46, no. 2 (2012): 473-99. https://doi.org/10.1093/jsh/shs099
  • Pelka, Fred. What We Have Done: An Oral History of the Disability Rights Movement. Amherst: University of Massachusetts Press, 2012.
  • Percy, Stephen L. Disability, Civil Rights, and Public Policy: The Politics of Implementation. Tuscaloosa: University of Alabama Press, 1989.
  • Phillips-Fein, Kim. Fear City: New York's Fiscal Crisis and the Rise of Austerity Politics. New York: Metropolitan Books, 2017. https://doi.org/10.7312/beck18524-005
  • Roberts, Nancy C., ed. The Age of Direct Citizen Participation. New York: Routledge, 2008.
  • Schweik, Susan. "Lomax's Matrix: Disability, Solidarity, and the Black Power of 504." Disability Studies Quarterly 31, no. 1 (2011). https://doi.org/10.18061/dsq.v31i1.1371
  • Scotch, Richard K. From Good Will to Civil Rights: Transforming Federal Disability Policy. Philadelphia, Pa.: Temple University Press, 2001.
  • Sherer Jacobson, Denise. The Question of David: A Disabled Mother's Journey Through Adoption, Family, and Life. Berkeley, Ca.: Creative Arts Book Company, 1999.
  • Sparrow, James T. Warfare State: World War II Americans and the Age of Big Government. New York: Oxford University Press, 2011.
  • Tomes, Nancy. Remaking the American Patient: How Madison Avenue and Modern Medicine Turned Patients into Consumers. Chapel Hill: University of North Carolina Press, 2016.
  • Trent, James W. Inventing the Feeble Mind: A History of Intellectual Disability in the United States. New York: Oxford University Press, 2017. https://doi.org/10.1093/med/9780199396184.001.0001
  • Tucker, Bonnie P. "Section 504 of the Rehabilitation Act after Ten Years of Enforcement: The Past and the Future." University of Illinois Law Review 1989 (1989): 845-921.
  • West, Jane. Federal Implementation of the Americans with Disabilities Act, 1991-94. New York: Milbank Memorial Fund, 1994.

Government Documents

  • 42 Fed. Reg. 22,677 (1977).
  • 42 Fed. Reg. 31,647 (1977).
  • Cherry v. Mathews, 419 F. Supp. 922 (D.D.C. 1976).
  • Lau v. Nichols, 414 U.S. 563 (1974)
  • Rehabilitation Act of 1973, Pub. L. 93-112, 87 Stat. 355 (1973).
  • Southeastern Community College v. Davis, 442 U.S. 397 (1979).

Newspapers

  • Chicago Tribune
  • Columbia Missourian
  • Daily Inter Lake [Kalispell, Montana]
  • Disability Rag
  • Lordsburg Liberal [Lordsburg, N.M.]
  • Los Angeles Times
  • Marin Independent [Marin, County, Ca.]
  • New Mexican [Santa Fe, N.M.]
  • Salt Lake Tribune
  • Seattle Times
  • Sunday Oregonian [Portland, Or.]
  • Times-Picayune [New Orleans, La.]
  • Tri-State Defender [Memphis, Tn.]
  • Washington Post

Endnotes

  1. * J.D., Ph.D. (History); Seaman Family University Professor, University of Pennsylvania. For generative conversations at early stages of this research, I am grateful to Mary Lou Breslin, Jennifer Erkulwater, Alan Kalmanoff, Cathy Kudlick, and Corbett O'Toole. I am also grateful to the many participants in this history who agreed to be interviewed for this project, some of whom preferred to remain anonymous. I workshopped versions of this article at many institutions over a period of several years, including the American Bar Foundation, Berkeley Law, Columbia Law School, Drexel University Thomas R. Kline School of Law, Harvard Law School, Moritz College of Law at The Ohio State University, New York University School of Law, Northwestern Pritzker School of Law, the Program in Law and Public Affairs at Princeton University, the University of Chicago, the University of Pennsylvania, the University of Virginia School of Law, and Yale Law School. I am grateful for all the comments I received in these settings. This project also benefitted from individual exchanges, including with Charisma Acey, Abbye Atkinson, George Aumoithe, Rabia Belt, Edward Berkowitz, Andrew Bradt, Chelsea Chamberlain, Deborah Dinner, Mary Dudziak, Elizabeth Emens, David Garland, Christine Jolls, Sophia Lee, Serena Mayeri, Joy Milligan, Calvin Morrill, Melissa Murray, Tejas Narechania, Shaun Ossei-Owusu, Claudia Polsky, David Pozen, Carolina Reid, Caitlin Rosenthal, Andrea Roth, Adam Samaha, Elena Schneider, Susan Schweik, Avani Mehta Sood, Michael Ashley Stein, Susan Sturm, Karen Trapenberg Frick, Lisa Trever, Barbara Welke, John Fabian Witt, Keith Woodhouse, and Mary Ziegler. Abigail Burman, Nicandro Iannacci, Lynn Nguyen, Alyse Ritvo, and Lilith Siegel provided excellent research assistance. Stephanie Dorton supplied exceptional administrative support. Thank you to the editors of Disability Studies Quarterly and to anonymous peer reviewers for their incisive critiques and their encouragement.
    Return to Text
  2. Saul Alinsky, as quoted by the Disability Law Resource Center, Center for Independent Living, "504 Training and Technical Assistance Project," Folder 39, Carton 1, Records of the Disability Rights Education and Defense Fund, Banc Mss 99/145 cz, Bancroft Library, University of California, Berkeley (hereafter "DREDF Papers").
    Return to Text
  3. Pub. L. 93-112, 87 Stat. 355 (1973) (hereafter "Rehabilitation Act of 1973").
    Return to Text
  4. Ruth Colker, "The ADA's Journey Through Congress," Wake Forest Law Review 39 (2004): 1-48.
    Return to Text
  5. 42 Fed. Reg. 31647 (1977).
    Return to Text
  6. Deborah Kaplan, interview by Sharon Bonney, 1998, Disability Rights and Independent Living Movement Oral History Project (hereafter "DRILM-OHP"), Regional Oral History Office, Bancroft Library, University of California, Berkeley (hereafter "Kaplan interview").
    Return to Text
  7. Disability Law Resource Center, Center for Independent Living, Inc., Providing Training and Technical Assistance in Section 504 to Handicapped Persons in the Western Region, Oct. 1980, Folder 53, Carton 15, DREDF Papers (hereafter "Western Final Report (Oct. 1980)"). By the time the contract for the Western Region ended, in 1982, the total number of trainees was 2,146. Disability Rights Education and Defense Fund, Inc., Final Report: Provide Section 504 Training and Technical Assistance to Handicapped Persons and Parents of Handicapped Persons in the Western Region, June 30, 1982, Folder 34, Carton 16, DREDF Papers (hereafter "Western Final Report (June 1982)"). On the use of the term "consumer," see infra at note 31.
    Return to Text
  8. The 25,000 estimate comes from Alan Kalmanoff, interview by Karen Tani, Oct. 25, 2017, Dec. 18, 2017, and May 1, 2018 (hereafter "Kalmanoff interview"). I have not been able to corroborate it.
    Return to Text
  9. The interviews in the Disability Rights and Independent Living Movement Oral History Project were collected in the 1990s and 2000s and targeted people who led, participated in, and observed the disability rights and independent living movement in the 1960s and 1970s.
    Return to Text
  10. Fred Pelka, What We Have Done: An Oral History of the Disability Rights Movement (Amherst: University of Massachusetts Press, 2012); Corbett Joan OToole, Fading Scars: My Queer Disability History, 2nd ed. (Berkeley, Ca.: Reclamation Press, 2019).
    Return to Text
  11. From the over 2500 trainee names that I found in the DREDF records, I selected a random sample of 100. Of that sample, many people were deceased. For others, no contact information was available. My mailings to the people for whom I could find contact information resulted in five trainee interviews, plus an interview with the adult daughter of a deceased trainee (someone from the random sample). Of the two non-random trainee interviews, one of the individuals came to my attention via a DREDF interviewee. The other I reached out to because, based on preliminary newspaper research, she seemed likely to offer a multi-faceted and under-represented perspective on the trainings: she is a Black woman with a mobility impairment who participated in a Section 504 training as a trainee but who also worked in the world of disability civil rights enforcement. All interviewees provided informed consent and were offered the option to remain anonymous. When I reference an interview with an anonymous participant, I use a randomly generated number as an identifier. This research protocol received advance approval from the Human Research Protection Program at my then institution, the University of California, Berkeley.
    Return to Text
  12. See generally Alison C. Carey, On the Margins of Citizenship: Intellectual Disability and Civil Rights in Twentieth-Century America (Philadelphia, Pa.: Temple University Press, 2009); James W. Trent, Inventing the Feeble Mind: A History of Intellectual Disability in the United States (New York: Oxford University Press, 2017); Anne E. Parsons, From Asylum to Prison: Deinstitutionalization and the Rise of Mass Incarceration after 1945 (Chapel Hill: University of North Carolina Press, 2018).
    Return to Text
  13. See generally Lindsay Patterson, "Points of Access: Rehabilitation Centers, Summer Camps, and Student Life in the Making of Disability Activism, 1960–1973," Journal of Social History 46, no. 2 (2012): 473-99, https://doi.org/10.1093/jsh/shs099.
    Return to Text
  14. Rehabilitation Act of 1973. On the ethos of rehabilitation-focused laws in the post-World War Two period, see generally, Jennifer Mittelstadt, From Welfare to Workfare: The Unintended Consequences of Liberal Reform (2005); Edward Berkowitz & Kim McQuaid, Creating the Welfare State: The Political Economy of Twentieth-Century Reform (New York: Praeger, 1980).
    Return to Text
  15. Rehabilitation Act of 1973.
    Return to Text
  16. Richard K. Scotch, From Good Will to Civil Rights: Transforming Federal Disability Policy (Philadelphia, Pa.: Temple University Press, 2001).
    Return to Text
  17. The 1973 Act did not identify which agency should take the lead on implementing Section 504. It became HEW's responsibility after HEW sought clarification from the Senate Labor and Public Welfare Committee. Scotch, From Good Will to Civil Rights, 60-61, 66-68; Robert A. Katzmann, Institutional Disability: The Saga of Transportation Policy for the Disabled (Washington, D.C.: Brookings Institution Press, 1986), 49-54, 99-100. Within HEW, OCR's ownership over Section 504 was overdetermined. OCR had experience implementing analogous laws (Title VI of the 1964 Civil Rights Act, Title IX of the Education Amendments of 1972), and other offices within HEW were not eager for this responsibility. Scotch, From Good Will to Civil Rights, 61-62. OCR's leadership role mattered because, as the agency's name suggests, its frame of reference was civil rights. Had HEW's Rehabilitation Services Administration been in charge, Section 504 "most likely would have been interpreted into an incremental and essentially educational program stressing voluntary cooperation." Ibid., 143.
    Return to Text
  18. John Wodatch, interview by Karen Tani, December 10, 2021 (hereafter "Wodatch interview").
    Return to Text
  19. Scotch, From Good Will to Civil Rights, 60-62; Katzmann, Institutional Disability, 100.
    Return to Text
  20. See Kim Phillips-Fein, Fear City: New York's Fiscal Crisis and the Rise of Austerity Politics (New York: Metropolitan Books, 2017).
    Return to Text
  21. Wodatch interview.
    Return to Text
  22. Wodatch interview (noting that when he was drafting regulations, even some of his disabled colleagues had a more circumscribed view of what Section 504 required).
    Return to Text
  23. A fascinating civil rights story undergirds this interpretation: In 1969, Latino leaders in San Francisco had alerted OCR to a problem facing their community: rather than helping Spanish-speaking students develop English language skills, public schools were allowing them to fall behind, sometimes placing them in classes designed for children with developmental and intellectual disabilities. (Students who spoke Chinese as their first language were encountering the same phenomenon.) Top administrators at OCR found the issue sufficiently compelling that, by late May of 1970, the agency had issued new guidance for select school districts, advancing a novel interpretation of Title VI. The document characterized the complained-about practices as a prohibited form of national-origin discrimination. It further stated that, for non-English-speaking students, Title VI required more than formally equal treatment; it required that school districts "take affirmative steps" on students' behalf, such as curricular changes and the hiring of bilingual teachers. A young lawyer named Martin Gerry took the lead in drafting enforcement instructions for this memo. Four years later, when he was in charge of the Section 504 regulations, he drew on this precedent. Gerry interview with Richard Scotch; see also Note, Mark F. Engebretson, "Administrative Action to End Discrimination Based on Handicap: HEW's Section 504 Regulation," Harvard Journal on Legislation 16, no. 1 (1979): 59-89, 74. That May 1970 guidance document became known as the "Lau Memorandum" after the Supreme Court upheld it in Lau v. Nichols, 414 U.S. 563 (1974). On the history of OCR and language rights, see Gareth Davies, "The Great Society After Johnson: The Case of Bilingual Education," Journal of American History 88, no. 4 (2002): 1405-29, 1417-21, https://doi.org/10.2307/2700603; Ming Hsu Chen, "Language Rights as a Legacy of the Civil Rights Act," SMU Law Review 67 (2014): 247-56.
    Return to Text
  24. Joseph A. Califano, Jr., Governing America: An Insider's Report from the White House and the Cabinet (New York: Simon & Schuster, 1981), 259.
    Return to Text
  25. Scotch, From Good Will to Civil Rights, 80-118; Cherry v. Mathews, 419 F. Supp. 922 (D.D.C. 1976); Califano, Governing America, 260.
    Return to Text
  26. See OToole, Fading Scars, 28-41; Susan Schweik, "Lomax's Matrix: Disability, Solidarity, and the Black Power of 504," Disability Studies Quarterly 31, no. 1 (2011), https://doi.org/10.18061/dsq.v31i1.1371.
    Return to Text
  27. 42 Fed. Reg. 22,677 (1977), § 34.6(c).
    Return to Text
  28. 42 Fed. Reg. 22,677 (1977), § 34.6(c). The language about assistance and consultation appeared relatively late in the regulation drafting process—sometime after May of 1976. See 41 Fed. Reg. 20,296 (1976), § 84.5 (omitting this language from the section covering "remedial action, affirmative action, and self-evaluation). It appears to have come from OCR staffers (likely lawyer John Wodatch and his team). Mary Lou Breslin, interview by Karen Tani, January 10, 2018 (hereafter "Breslin interview – author"). Wodatch credits "forward looking" staff members, as well as a desire by HEW Secretary Joe Califano to make sure that people understood the new law. Wodatch interview.
    Return to Text
  29. Nancy C. Roberts, ed., The Age of Direct Citizen Participation (New York: Routledge, 2008), 9.
    Return to Text
  30. This was part of a broader "technical assistance campaign." In addition to "consumers," HEW sought to educate state and local government officials, institutions of higher education, and other recipients of federal funds. Joseph DePhillips, interview with Karen Tani, July 3, 2018; Jim Bennett, interview by Richard Scotch, Jul. 1, 1980, on file with author; Wodatch interview; see also Jane West, Federal Implementation of the Americans with Disabilities Act, 1991-94 (New York: Milbank Memorial Fund, 1994), 8 (calculating that "federal agencies spent $50 million over a three-year period on technical assistance to implement Section 504").
    Return to Text
  31. On the consumer-citizen in twentieth-century U.S. history, see Lizabeth Cohen, A Consumer's Republic: The Politics of Mass Consumption in Postwar America (New York: Alfred A. Knopf, 2003). On the rise of consumerism within the medical field, see Nancy Tomes, Remaking the American Patient: How Madison Avenue and Modern Medicine Turned Patients into Consumers (Chapel Hill: University of North Carolina Press, 2016). On the ethos of the independent living movement, including its invocation of "consumer sovereignty," see Gerben DeJong, "Independent Living: From Social Movement to Analytic Paradigm," Archives of Physical and Medical Rehabilitation 60 (Oct. 1979): 435-46, 439. John Wodatch, an OCR lawyer heavily involved in drafting the regulations, says the word "consumer" likely came from the disability community. Wodatch interview.
    Return to Text
  32. On the use of the term "crip capital of the world," see, for example, Anne Finger, Elegy for a Disease: A Personal and Cultural History of Polio (New York: St. Martin's Press, 2006); Tape 44, Disability Rights Education and Defense Fund sound recordings, Phonotape 3524 C, Bancroft Library, University of California, Berkeley (hereafter "DREDF sound recordings").
    Return to Text
  33. The roots of the disability rights movement run deeper, as a growing literature details. See Audra Jennings, Out of the Horrors of War: Disability Politics in World War II America (Philadelphia: University of Pennsylvania Press, 2016); Felicia Kornbluh, "Disability, Antiprofessionalism, and Civil Rights: The National Federation of the Blind and the 'Right to Organize' in the 1950s," Journal of American History 97, no. 4 (2011): 1023-47, https://doi.org/10.1093/jahist/jaq123; Patterson, "Points of Access."
    Return to Text
  34. Pelka, What We Have Done, 197-198; OToole, Fading Scars, 48-57.
    Return to Text
  35. O'Toole, Fading Scars, 48-76; Sonny Kleinfeld, "Declaring Independence in Berkeley," Handicapped Lib. II (1979), Folder 6, Carton 1, Deborah Kaplan papers, Banc MSS 99/369, Bancroft Library, University of California, Berkeley; O'Toole interview – Bancroft.
    Return to Text
  36. Kleinfeld, "Declaring Independence"; see also Denise Sherer Jacobson, interview with Karen Tani, May 28, 2019 (noting that many CIL staff members started out as clients).
    Return to Text
  37. Allies in the federal bureaucracy helped CIL identify good sources. For example, crucial seed money ($50,000) came from the federal Rehabilitation Services Administration, via a sympathetic contact in a regional office. Kleinfeld, "Declaring Independence"; Herbert Leibovitz, interview by Susan O'Hara, 1998, DRILM-OHP. Shortly thereafter, CIL won a $350,000 federal grant for a "peer counseling project"—a fancy name for the work that CIL was already doing. Leibovitz oral history; Mary Lester, interview by Susan O'Hara, March 2000, DRILM-OHP. CIL also used federal programs to recruit and pay the kind of people they needed. For example, Comprehensive Employment and Training Act funds enabled CIL to hire Lloyd Burton, whose experience on Capitol Hill helped CIL win additional government contracts. Lloyd Burton, interview with Karen Tani, July 9, 2018.
    Return to Text
  38. Kaplan interview; Mary Lou Breslin, interview by Susan O'Hara, 1996-1998, DRILM-OHP (hereafter "Breslin interview 1 - Bancroft"); Center for Independent Living, "Proposal for Disability Law Resource Center," March 13, 1978, Folder 3, Carton 1, DREDF Papers.
    Return to Text
  39. Congress established the VISTA program in 1964 as part of the Johnson Administration's War on Poverty. Similar to the Peace Corps but with a domestic focus, VISTA placed participants with host agencies for a year of government-funded service.
    Return to Text
  40. Funds in these early years also came from a local foundation (the Berkeley Law Foundation) and from the federal "University Year in Action" program. Robert Funk and Paul Silver to Membership and Board of Directors, Berkeley Law Foundation, April 2, 1978, Folder 21, Carton 1, DREDF Papers; Richard Cowart to Bob Funk and Paul Silver, Dec. 13, 1977, Folder 21, Carton 1, DREDF Papers; Robert Funk to CIL Board of Directors, "End of the Year Report," Jan. 20, 1979, Folder 7, Carton 1, DREDF Papers.
    Return to Text
  41. O'Toole interview – Bancroft; Mary Lou Breslin, interview by Jim Weisman, 1990, Box 2, Disability Rights Leadership Archive video collection, Motion Picture 942 D, Bancroft Library, University of California, Berkeley (hereafter "Breslin interview 2 – Bancroft").
    Return to Text
  42. Wodatch interview.
    Return to Text
  43. Phil Draper, Judy Heumann, and Bob Funk to CIL Staff, Oct. 20, 1978, Folder 5, Carton 1, DREDF Papers.
    Return to Text
  44. Breslin interview 1 – Bancroft. CIL was the most important but not the only organization that conducted Section 504 trainings. Contract Research Corporation, a Boston-based consulting firm, received a contract to do the first trainings in the Midwest. Tape 44, DREDF sound recordings. The Public Interest Law Center of Philadelphia ("PILCOP") received a contract around the same time for training sessions on the East Coast. After about two and a half years, the American Coalition of Citizens with Disabilities took over the PILCOP training program. "Workshop on Rights for the Handicapped," Washington Post, Jan. 31, 1980; Thomas K. Gilhool, Interview by Fred Pelka, 2004-2008, DRILM-OHP (hereafter "Gilhool interview"). The North Carolina organization Barrier Free Environments, led by universal design pioneer Ron Mace, conducted trainings in the Southeast. Gilhool interview; Barrier Free Environments, Inc., "504 Training for 1981 and 1982," Folder 11, Box 10, Ron Mace Papers, MC 00260, Special Collections Research Center, North Carolina State University, Raleigh, N.C. (hereafter "Mace Papers"). With the exception of the Contract Research Corporation, these various organizations were in conversation, and often other groups adopted CIL's training materials, sometimes as part of a sub-contracting relationship. Gilhool interview; Breslin interview – author; Disability Rights Education and Defense Fund, Inc., Technical Proposal: Training Workshops and Follow-up Technical Assistance on Section 504 for Disabled Persons and Their Parents in the Midwest, RFP 81-043, June 3, 1981, Folder 33, Carton 16, DREDF Papers (hereafter "Midwest Technical Proposal (June 1981)") (noting subcontracting relationships with the MESA Corporation (Orem, Utah) and Barrier Free Environments).
    Return to Text
  45. Breslin interview 1 - Bancroft.
    Return to Text
  46. Robert J. Funk, "Proposal for Disability Law Resource Center," Mar. 13, 1978, Folder 3, Carton 1, DREDF Papers.
    Return to Text
  47. Breslin interview 1 - Bancroft.
    Return to Text
  48. Kalmanoff interview. Some of these methods Kalmanoff derived from heady weekends in the late 1960s at the Esalen Institute, a New Age spiritual retreat that was then home to famed psychiatrist and psychotherapist Fritz Perls. Others he borrowed from his consultant colleague Mimi Silbert, former director of a well-known "Personal Encounter Group" program at Berkeley's Stiles Hall. Id.
    Return to Text
  49. Western Final Report (Oct. 1979); Western Final Report (Oct. 1980); Breslin interview - author. CIL's North Carolina-based collaborator Barrier Free Environments appears to have employed a similar form for its trainings. See "504 Training & Technical Assistance," Disability Rag 1, no. 7 (1980): 1.
    Return to Text
  50. Breslin interview – author; see also Corbett O'Toole, interview by Karen Tani, June 18, 2018 (hereafter "O'Toole interview - author") (noting that in less populous regions, DLRC recruited people directly from hospitals and other institutions). In subsequent years, DLRC asked former trainees to suggest names and thereby broadened its reach. Disability Rights Education and Defense Fund, "The Development and Production of 504 Workshops and Follow-up Technical Assistance for Handicapped Persons in the Midwest Geographic Area: Final Report," March 1981, Folder 2, Carton 16, DREDF Papers (hereafter "Midwest Technical Assistance Report (March 1981)").
    Return to Text
  51. Disability Law Resource Center of the Center for Independent Living, "504 Training and Technical Assistance Project," Folder 39, Carton 1, DREDF Papers. PILCOP took a somewhat different approach: it limited participation to individuals nominated by one of the disability organizations that PILCOP contacted. But like CIL, it made clear that it was looking for people who had an interest in organizing or advocacy and were likely to put their knowledge to use. James R. Raggio, et al., " 504 Training and Enforcement Massachusetts, 1978-1979," Nov. 3, 1978, Box 44, Public Interest Law Center of Philadelphia Records, Special Collections Research Center, Temple University, Philadelphia, Pa. (hereafter "PILCOP Records"); Edward A. Stutman, et al., "Section 504 Enforcement in New Hampshire: A Workshop July 26th to 29th, 1979," July 26, 1979, Box 44, PILCOP Records.
    Return to Text
  52. Western Final Report (Oct. 1979); Western Final Report (Oct. 1980).
    Return to Text
  53. Midwest Technical Assistance Report (March 1981). It is unclear to me how DLRC identified trainees who reported multiple impairments. On efforts to diversify the training population, see Disability Law Resource Center, Center for Independent Living, "Providing Training and Technical Assistance in Section 504 to Handicapped Persons in the Western Region, Final Report," October 1980, Folder 53, Carton 15, DREDF Papers (reporting that in 1980, in Oakland, California, DLRC held a special training session for "minorities" in which ninety-two people participated).
    Return to Text
  54. Jane Futcher, "Vernon Cox, Advocate for Disabled, Dies at 72," Marin Independent [Marin County, Ca.], Jan. 16, 2001.
    Return to Text
  55. Roxanne Brown, "Miss Wheelchair Chicago," Tri-State Defender [Memphis, Tn.], Jul. 29, 1980; "Clarinda Valentine: Adoption Officials Were Leery of a Single, Disabled Person," Chicago Tribune, Jun. 21, 1987.
    Return to Text
  56. Rosanna Hall, "Museum Becoming More Sensitive to Handicapped," New Mexican [Santa Fe, N.M.], Mar. 1, 1981.
    Return to Text
  57. Mary-Therese Schweikert, interview with Karen Tani, Aug. 30, 2019. Schweikert considered herself nondisabled for much of her life, but that view changed in 1977, after a car accident left her with a brain injury. Ibid.
    Return to Text
  58. Joan Thom, interview with Karen Tani, June 5, 2019.
    Return to Text
  59. Bergum's training was the beginning of a long career of activism. Within a few years, she was in the trainer role at these Section 504 trainings. Kalmanoff interview; Kitty Cone, Interview conducted by David Landes, 1996-1998, DRILM-OHP (hereafter "Cone interview"); O'Toole interview - author.
    Return to Text
  60. See, for example, Nate Cohen, "Orleanian Jeff Lambrecht to Compete in 'Deaf Olympics,'" Times-Picayune [New Orleans, La.], Feb. 7, 1965, 6-2; "Grand Rapids Archer Captures Gold Medal," Chicago Tribune, Nov. 13, 1968, C3 (spotlighting trainee Tom Kelderhouse); Mayerene Barker, "Boy's Legs Fail But Spirit Wins," Los Angeles Times, Aug. 9, 1979, SG1 (profiling trainee Florence Powdrill's disabled son, Eric); "Victim of Circus Bear Assists Handicapped," Sunday Oregonian [Portland, Or.] Dec. 19, 1971, 28 (profiling trainee Fred Gilbert); Dan Duncan, "A Most Determined Young Woman," Seattle Times, Mar. 30, 1972, A13 (profiling trainee Sharon Jodock); Ruth Augur, "A Not-So-Simple Case of Blind Leading Blind," Columbia Missourian, Jan. 7, 1977, 1 (profiling trainee Tom Stevens).
    Return to Text
  61. Western Final Report (Oct. 1980).
    Return to Text
  62. Roberta Ann Johnson, "Mobilizing the Disabled," in Social Movements of the Sixties and Seventies, ed. Jo Freeman (New York: Longman, Inc., 1983), 25-46, 40, citing a 1980 interview with Judy Heumann, then Senior Deputy Director at CIL.
    Return to Text
  63. Kalmanoff interview.
    Return to Text
  64. Independent Living Research Utilization Project, "Independent Living: Six Model Programs," 1978, http://www.ilru.org/independent-living-six-model-programs.
    Return to Text
  65. The trainings began as three-day programs. Partway through 1979, DLRC added an extra half-day. Western Final Report (Oct. 1979).
    Return to Text
  66. The Claremont Hotel in the San Francisco Bay Area is one example. Another is the Hotel Utah, still remembered as "Salt Lake City's first world-class hotel." Lee Davidson, "Whatever Happened To . . . the Hotel Utah?" Salt Lake Tribune, Jan. 11, 2016.
    Return to Text
  67. Kalmanoff interview; Breslin interview - author.
    Return to Text
  68. O'Toole interview - author.
    Return to Text
  69. Western Final Report (Oct. 1980); Breslin interview 1 - Bancroft.
    Return to Text
  70. Western Final Report (Oct. 1980); Breslin interview 1 – Bancroft; Kalmanoff interview.
    Return to Text
  71. Facilitator was a coordination role that, by 1980, fell either to Judy Freespirit (a.k.a. Judith Ackerman) or Pat Wright. Both became nationally known figures in the disability rights movement. Untitled "attachment for undetermined proposal or report," ca. 1980, folder 7, Carton 16, DREDF Papers. Freespirit was a pioneer in the fat acceptance movement. Elizabeth M. Matelski, Reducing Bodies: Mass Culture and the Female Figure in Postwar America (New York: Routledge, 2017), 134. Pat Wright is often credited with shepherding the ADA into law. Lennard J. Davis, Enabling Acts: The Hidden Story of How the Americans with Disabilities Act Gave the Largest US Minority Its Rights (Boston: Beacon Press, 2015).
    Return to Text
  72. Untitled "attachment for undetermined proposal or report," ca. 1980, folder 7, Carton 16, DREDF Papers.
    Return to Text
  73. Ibid.; see also Charles A. Grimes, interview by David Landes, 1998, DRILM-OHP (hereafter "Grimes interview") (recalling that Mary Lou Breslin "could get shit out of able-bodied hotel staff [that] you just can't believe").
    Return to Text
  74. O'Toole interview - author; OToole interview - Bancroft.
    Return to Text
  75. Johnnie Lacy, interview by David Landes, July 1998, DRILM-OHP (hereafter "Lacy interview").
    Return to Text
  76. "Independent Living: Six Model Programs."
    Return to Text
  77. Western Final Report (Oct. 1980); untitled "attachment for undetermined proposal or report," ca. 1980, Folder 7, Carton 16, DREDF Papers.
    Return to Text
  78. O'Toole interview - author. O'Toole attributes the phrase "disability pretty" to artist and writer Naomi Ortiz.
    Return to Text
  79. Kalmanoff interview; Breslin interview - author; Western Final Report (Oct. 1980).
    Return to Text
  80. O'Toole interview - author; Clarinda Valentine, interview with Karen Tani, July 18, 2018.
    Return to Text
  81. Kathy Martinez, interview with Karen Tani, July 16, 2018.
    Return to Text
  82. Kalmanoff interview; Ann Cupolo, interview by Karen Tani, July 5, 2018.
    Return to Text
  83. Kalmanoff interview.
    Return to Text
  84. Tape 47, DREDF sound recordings.
    Return to Text
  85. Tape 45, DREDF sound recordings.
    Return to Text
  86. Tape 36, DREDF sound recordings.
    Return to Text
  87. Tape 36, DREDF sound recordings. Trainers Ann Cupulo and Shelley Bergum told variations of the same story. Tape 45, DREDF sound recordings; Tape 44, DREDF sound recordings
    Return to Text
  88. Tape 47, DREDF sound recordings.
    Return to Text
  89. Tape 45, DREDF sound recordings.
    Return to Text
  90. Tape 36, DREDF sound recordings.
    Return to Text
  91. Western Final Report (Oct. 1979); Western Final Report (Oct. 1980).
    Return to Text
  92. Kalmanoff interview. By "leg bag," Kalmanoff referred to a catheter drainage bag.
    Return to Text
  93. Western Final Report (Oct. 1979). Top HEW officials agreed with this framing, but it was not something that HEW mandated. HEW's review of training materials was more focused on legal accuracy. Wodatch interview.
    Return to Text
  94. Disability Law Resource Center of the Center for Independent Living, 504 Content and Strategies: A Consumer Training Curriculum, Dec. 1979, Folder 47, Carton 15, DREDF Papers (hereafter "1979 Curriculum"). In another DLRC document from the same time period, Section 504 was contextualized differently—as one of a range of laws and policies that incorporated people with disabilities into social and economic life. "Independent Living, Civil Rights, and the Disabled," 1980, Folder 34, Carton 4, DREDF Papers. In other words, a civil rights framing was not the only option.
    Return to Text
  95. 42 Fed. Reg. 22,677 (1977) (emphasis added); Tape 37, DREDF sound recordings.
    Return to Text
  96. 42 Fed. Reg. 22,677 (1977); Tape 37, DREDF sound recordings.
    Return to Text
  97. Tape 40, DREDF sound recordings.
    Return to Text
  98. Tape 44, DREDF sound recordings.
    Return to Text
  99. Disability Law Resource Center of the Center for Independent Living, 504 Content and Strategies: A Consumer Training Curriculum, 1978, Folder 44, Carton 15, DREDF Papers (hereafter "1978 Curriculum"); Breslin interview - author.
    Return to Text
  100. Midwest Final Report (March 1981).
    Return to Text
  101. Kalmanoff interview. The PILCOP trainings also included simulations, but they appear to have been more like semi-scripted performances. This method apparently came from a training program developed for legal services lawyers. Gilhool interview; "Mass. 504 - Teams and Officials," Box 44, PILCOP Records.
    Return to Text
  102. 1979 Curriculum.
    Return to Text
  103. Tape 36, DREDF sound recordings.
    Return to Text
  104. Tape 44, DREDF sound recordings.
    Return to Text
  105. Tape 40, DREDF sound recordings.
    Return to Text
  106. Tape 37, DREDF sound recordings.
    Return to Text
  107. Western Final Report (Oct. 1979).
    Return to Text
  108. Tape 45, DREDF sound recordings.
    Return to Text
  109. O'Toole interview - author. HEW agreed, apparently. "If you've picked up the concept of a rights-bearing attitude, that's the biggie," remarked Kathy Condon, a regional representative of HEW's Office for Civil Rights, at a training in Chicago. "Once you cease to apologize for our existence," she continued, referencing her own disability, "and say . . . 'hey, we have a right to be here, and this is the way it's gotta be,' then half the battle is over." The other half was hammering out "technicalities," and federal administrators were "there to help with that." Tape 41, DREDF sound recordings. Condon may have been a more sympathetic administrator than most. She was Mary Lou Breslin's former roommate, from Breslin's pre-Berkeley days. Breslin Bancroft interview. But in my research, I have encountered multiple HEW administrators who identified as disabled and sympathized with the disability rights movement, suggesting that Condon was not an outlier.
    Return to Text
  110. Judith Heumann, interview by Susan Brown, David Landes, and Jonathan Young, 1998-2001, DRILM-OHP. Thomas Gilhool, who helped design PILCOP's 504 trainings, put it similarly: "[T]he primary emphasis of the training . . . was not so much the uses of the law in formal proceedings, courts, or even administrative proceedings, but it was the uses of the law in public action, and in negotiation." Gilhool interview.
    Return to Text
  111. "Checklist for Preparing Negotiations," ca. 1978, F21, Carton 18, DREDF Papers (noting that the document was adapted from materials developed by the American Arbitration Association).
    Return to Text
  112. This lack of emphasis on litigation may have reflected the era's broader enthusiasm for ADR. See Deborah S. Hensler, "Our Courts, Ourselves: How the Alternative Dispute Resolution Movement is Re-shaping Our Legal System," Penn State Law Review 108 (2003): 165-97. But it also matched pragmatic advice coming from the federal government. While not explicitly discouraging trainees from filing lawsuits or administrative complaints, OCR representative Kathy Condon told Chicago trainees that she could "hardly recommend" these formal, adversarial routes. She noted the possibility of retaliation, the difficulty of navigating formal processes without a lawyer, and the prospect of encountering, and perhaps inadvertently worsening, a bad body of case law. Tape 41, DREDF sound recordings. On bad case law, see, for example, Southeastern Community College v. Davis (1979), in which the Supreme Court adopted an infamously narrow reading of Section 504's "otherwise qualified" language. 442 U.S. 397 (1979).
    Return to Text
  113. O'Toole interview - author.
    Return to Text
  114. Western Final Report (Oct. 1980).
    Return to Text
  115. Western Final Report (Oct. 1980).
    Return to Text
  116. O'Toole interview - author.
    Return to Text
  117. O'Toole interview - Bancroft; O'Toole interview - author.
    Return to Text
  118. Western Final Report (Oct. 1980).
    Return to Text
  119. Midwest Final Report (March 1981) (providing information about three satellite units: Access Living (Chicago), the League of Human Dignity (Lincoln, Nebraska), and the Wisconsin Disability Coalition).
    Return to Text
  120. Western Technical Assistance Report (Feb. 1981).
    Return to Text
  121. Western Final Report (Oct. 1980); Midwest Final Report (March 1981).
    Return to Text
  122. Johnson, "Mobilizing the Disabled," 40, citing her 1980 interview with Linda Gill, then a consultant for CIL.
    Return to Text
  123. Wodatch interview (recalling that in addition to educating people, DREDF and other groups "were developing a movement" and "developing political clout . . . and there's nothing wrong with that").
    Return to Text
  124. See, for example Tape 36, DREDF sound recordings; Tape 44, DREDF sound recordings.
    Return to Text
  125. Breslin interview - author; see also Martinez interview (explaining that the trainings connected people to the disability rights movement and taught useful organizing skills, such as "how to do a press conference").
    Return to Text
  126. On deregulation in the Reagan administration, see generally Larry N. Gerston, Cynthia Fraleigh, & Robert Schwab, The Deregulated Society (Pacific Grove, Ca.: Brooks/Cole Publishing Co., 1988). On the targeting of Section 504 and DREDF's awareness of it, see Stephen L. Percy, Disability, Civil Rights, and Public Policy: The Politics of Implementation (Tuscaloosa: University of Alabama Press, 1989), 88; Western Technical Assistance Report (Feb. 1981); Arlene B. Mayerson, Disability Rights and the Status of the Federal Government: The Status of Section 504 and P.L. 94-182 in 1982, Dec. 28, 1982, Folder 44, Carton 3, DREDF Papers.
    Return to Text
  127. DREDF to "Friends," Feb. 25, 1982, Folder 39, Carton 24, DREDF Papers.
    Return to Text
  128. DREDF to "Friends," Jan. 13, 1982, Folder 39, Carton 24, DREDF Papers. The trainings were also still going on in early 1982 (although it was clear that they would not continue), and some evidence suggests that DREDF used these to encourage political activity. Tape 44, DREDF sound recordings. But that was a risk, especially after a conservative group identified DREDF as a "left leaning group" to watch, and DREDF did not want to jeopardize funds that they were already counting on to pay the bills. Bob Funk to Board of Directors, DREDF, Apr. 16, 1982, Folder 39, Carton 18, DREDF Papers; John H. Getreu to Shelley Bergum, Apr. 19, 1982, Folder 42, Carton 18, DREDF Papers.
    Return to Text
  129. Davis, Enabling Acts, 32-33; Robert J. Funk to "Friends," Mar, 24, 1983, Folder 39, Carton 24, DREDF Papers.
    Return to Text
  130. Breslin interview 1 – Bancroft; see also Wodatch interview (characterizing the trainings as instrumental in generating a powerful response to attacks on Section 504); Gilhool interview (noting that PILCOP used its 504 training network in the same way). DREDF reportedly used the same tactics with regards to PL 94-192, the Education for all Handicapped Children Act (1975). When the group received word of proposed changes to the regulations, it sent signals to the grassroots network and vocal opposition to the proposed regulatory reforms followed. Percy, Disability, Civil Rights, and Public Policy, 176.
    Return to Text
  131. Lex Frieden, interview by Sharon Bonney, 2002, DRILM-OHP; see also Gilhool interview.
    Return to Text
  132. Breslin interview 2 – Bancroft. Recent scholarship has called into question whether grassroots organizing mattered to this particular legislative success; by the mid-1980s, elite coalitions and friendships may have mattered far more. Davis, Enabling Acts. On the other hand, it seems clear that trainees strengthened the disability rights movement and gave it a broader geographical reach; in that less direct way, they contributed to the felt necessity for a law like the ADA. Wodatch interview.
    Return to Text
  133. The Philadelphia-based Public Interest Law Center ran these trainings, using an approach similar to DLRC's.
    Return to Text
  134. Kaplan interview.
    Return to Text
  135. O'Toole interview - Bancroft.
    Return to Text
  136. Western Final Report (Oct. 1979).
    Return to Text
  137. Ibid.
    Return to Text
  138. Western Technical Assistance Report (Feb. 1981). PILCOP also encouraged trainees to report their post-training activities and then compiled the results. The group's Massachusetts training reportedly led to involvement with formal compliance efforts at the state and local level, as well as with higher education institutions. James J. Raggio, "Technical Assistance for 504 Enforcement in Massachusetts," Feb. 16, 1979, Box 44, PILCOP Records. Trainees reported using their knowledge about 504 to tackle issues relating to education, policing, housing, transportation, access to public spaces, and more. James J. Raggio, "504 Enforcement in Massachusetts Follow-up Meetings," Jan. 16, 1979, Box 44, PILCOP Records.
    Return to Text
  139. Midwest Technical Assistance Report (May 1981).
    Return to Text
  140. Midwest Technical Assistance Report (May 1981). The case appears to be Akers v Bolton, 531 F. Supp. 300 (D. Kans. 1981).
    Return to Text
  141. Midwest Technical Assistance Report (May 1981).
    Return to Text
  142. Western Technical Assistance Report (Feb. 1981). HEW documents tell a similar story. According to an HEW document from December 1980, trainings in the Northeast in the previous two years had "resulted in approximately 1,500 voluntary compliance activities," all across the states in the region. And many of that region's 960 trainees had "become vigorously involved" in enforcing compliance with Section 504. U.S. Department of Education, Office of Procurement and Assistance Management, Request for Proposal, RFP Number 81-12, Dec. 23, 1980, Folder 5, Box 10, Mace Papers.
    Return to Text
  143. Disability Rights Education and Defense Fund, Inc., The Development and Production of 504 Workshops and Follow-Up Technical Assistance for Handicapped Persons in the Midwest Geographic Area, Final Report, Volume II, May 1981, Folder 3, Carton 16, DREDF Papers (hereafter "Midwest Technical Assistance Report (May 1981)"). Some evidence suggests that trainings in the Southeast, conducted by CIL ally Barrier Free Environments, had a similar effect. See Cass Irvin, "Meeting Tonight," Disability Rag 1, no. 10 (1980): 1 (noting how a 504 training in Kentucky inspired the organization of a state-wide cross-disability coalition).
    Return to Text
  144. "Court Says Disabled Must Get First Chance at Job," The Daily Inter Lake [Kalispell, Montana], Jun. 17, 1983, A-3; "Court's Decision On Hiring Preference Gets Mixed Review," The Daily Inter Lake [Kalispell, Montana], Jun. 19, 1983, A-3.
    Return to Text
  145. Jacqui Tillman, "Annual SWSH Meet Held," Lordsburg Liberal [N.M.], Sept. 26, 1980.
    Return to Text
  146. Shirley Jarman, interview with Karen Tani, June 5, 2019.
    Return to Text
  147. Interview 25, July 10, 2018.
    Return to Text
  148. See, for example, Bonnie P. Tucker, "Section 504 of the Rehabilitation Act after Ten Years of Enforcement: The Past and the Future," University of Illinois Law Review 1989 (1989): 845-921; Ruth Colker, "The Death of Section 504," University of Michigan Journal of Law Reform, 35 (2001): 219-61.
    Return to Text
  149. DePhillips interview
    Return to Text
  150. Cupolo interview.
    Return to Text
  151. Valentine interview.
    Return to Text
  152. David M. Engel & Frank W. Munger, Rights of Inclusion: Law and Identity in the Life Stories of Americans with Disabilities (Chicago: University of Chicago Press, 2003).
    Return to Text
  153. Interview 23, May 29 and 31, 2019.
    Return to Text
  154. Lacy interview.
    Return to Text
  155. Interview 25, July 10, 2018.
    Return to Text
  156. Grimes interview.
    Return to Text
  157. Lynette Taylor, interview with author, August 23, 2018.
    Return to Text
  158. Taylor interview.
    Return to Text
  159. Martinez interview.
    Return to Text
  160. Breslin interview – author.
    Return to Text
  161. Frank Laski, interview with Karen Tani, May 21, 2020.
    Return to Text
  162. Breslin interview – author.
    Return to Text
  163. Breslin interview 1 - Bancroft.
    Return to Text
  164. Breslin interview 1 - Bancroft.
    Return to Text
  165. Martha Minow, Making All the Difference: Inclusion, Exclusion, and American Law (Ithaca, N.Y.: Cornell University Press, 1990), 218 (writing about the insights generated by feminist legal theorists).
    Return to Text
  166. These questions spring from Naomi Ortiz's commentary on what it means to be an "ally": going beyond "making an exception to adapt your life for minutes or hours to include someone different" to "a commitment to asking yourself what about your life requires those 'adaptations' or 'inclusions' to be made in the first place." Naomi Ortiz, "Dear Ally," 2014, https://www.naomiortiz.com/blog/dear-ally.
    Return to Text
  167. James T. Sparrow, Warfare State: World War II Americans and the Age of Big Government (New York: Oxford University Press, 2011), 260.
    Return to Text
  168. Sean Farhang, The Litigation State: Public Regulation and Private Lawsuits in the U.S. (Princeton, N.J.: Princeton University Press, 2010).
    Return to Text
  169. Chai R. Feldblum, "The (R)evolution of Physical Disability Anti-discrimination Law: 1976-1996," Mental and Physical Disability Law Reporter 20, no. 5 (1996): 613-21.
    Return to Text
  170. There is an ample literature on the benefits and drawbacks of U.S. disability civil rights law, including its reliance on private enforcement. For a recent example, see Thomas F. Burke & Jeb Barnes, "The Civil Rights Template and the Americans with Disabilities Act: A Sociolegal Perspective on the Promise and Limits of Individual Rights," in The Rights Revolution Revisited : Institutional Perspectives on the Private Enforcement of Civil Rights in the U.S., ed. Lynda G. Dodd (New York: Cambridge University Press, 2018), 167-94.
    Return to Text
  171. Elizabeth F. Emens, "Disability Admin: The Invisible Cost of Being Disabled," Minnesota Law Review 105 (2021): 2329-77, 2349-54, https://minnesotalawreview.org/article/disability-admin-the-invisible-costs-of-being-disabled/.
    Return to Text
  172. Doron Dorfman, "Fear of the Disability Con: Perceptions of Fraud and Special Rights Discourse," Law & Society Review 53, no. 4 (2019): 1051-91; Samuel R. Bagenstos, "The Perversity of Limited Civil Rights Remedies: The Case of 'Abusive' ADA Litigation," UCLA Law Review 54, 1 (2006): 1-36.
    Return to Text
  173. Sherer Jacobson interview; Denise Sherer Jacobson, The Question of David: A Disabled Mother's Journey Through Adoption, Family, and Life (Berkeley, Ca.: Creative Arts Book Company, 1999).
    Return to Text
  174. Valentine interview.
    Return to Text
Return to Top of Page