Disability Studies Quarterly
Winter 2003, Volume 23, No. 1
pages 148-164 <www.dsq-sds.org>
Copyright 2003 by the Society
for Disability Studies

A Partially Annotated Bibliography of Publications in the Field of Disability Studies for the Year 2000

Compiled by David Pfeiffer
Center on Disability Studies
University of Hawaii

This bibliography is only partially annotated because the volume of disability studies literature is becoming overwhelming. The increasingly larger number of publications each year is an indication of the progress of the field which is growing in breadth and depth as well as in number. These entries represent only a small part of the literature and are only a place to start.

I am very indebted to my colleagues in the field who gladly share publications in their areas of expertise. Without such sharing this bibliography and others would not be possible. A similar bibliography, but for the year 2001, will appear in the Spring 2003 issue of Disability Studies Quarterly. Yet another similar one, but for the year 2002, will appear in the Summer 2003 issue.

Abel, Emily K. (2000) Hearts of Wisdom: American Women Caring for Kin, 1850-1940. Cambridge: Harvard University Press. An examination of the meaning and the costs of caregiving to women in the US from the time before the Civil War to just prior to the US entry into World War II. One chapter discusses mothers caring for children labelled feebleminded and another the problems of raising children in conformity to the oralist principles.

Abrums, Mary. (2000) "Jesus will fix it after awhile": Meanings and Health. Social Science & Medicine, 50(1): 89-106. Adams, Malcolm; Palmer, Anne; O'Brien, John T.; Crook, William. (2000) Health of the Nation Outcome Scales for Psychiatry: Are They Valid? Journal of Mental Health, 9(2): 193- 98.

Adams, Maurianne; Blumenfeld, Warren J.; Castaneda, Rosie; Hackman, Heather W.; Peters, Madeline L.; Zuniga, Ximena (editors). (2000) Readings for Diversity and Social Justice: An Anthology on Racism, Sexism, Anti-Semitism, Heterosexism, Classism, and Ableism. New York: Routledge. One of the first readers on diversity which included ableism.

Ahmad, Waqar. (2000) Ethnicity, Disability and Chronic Illness. London: Open University Press.

Allen, David. (2000) Recent Research on Physical Aggression in Persons with Intellectual Disability: An Overview. Journal of Intellectual & Developmental Disability. 25(1): 41-58.

Amundson, Ron. (2000) Against Normal Function. Studies in History and Philosophy of Biological and Biomedical Sciences. 31(1): 33-53. An excellent analysis of the concepts of normal and abnormal as found in the biological sciences (and which form the foundation of the medical model of disability) showing that they are social judgments of what are acceptable biological variations which justify the disadvantages of people with disabilities.

Anderson, Elena M.; Fitch, Carol A.; McLendon, Patricia M.; Meyers, Allan R. (2000) Reliability and Validity of Disability Questions for US Census 2000. American Journal of Public Health, 90(8): 1297-99. Using a sample of 131 people with disabilities and their proxies (part of the sample from St. Louis and part from Massachusetts), the Census 2000 questions, the Behavioral Risk Factor Surveillance System, and the Activities of Daily Living instrument were compared for validity and the reliability of the proxies' answers. More impairments were reported by proxies than by people with disabilities and there was low agreement. The three sets of questions were moderately in agreement. An accurate profile of people with disabilities may not come out of the Census 2000.

Anderson, P.; Kitchin, R. (2000) Disability, Space and Sexuality: Access to Family Planning Services. Social Science and Medicine, 51(8): 1163-73.

Antonak, Richard F.; Livneh, Hanoch (2000) Measurement of Attitudes Towards Persons with Disabilities. Disability and Rehabilitation, 22(5): 211-24. A review of measurement instruments of attitudes toward people with disabilities. They discuss ten direct measures (people know that their attitudes are being measured) and fourteen indirect measures (people do not know). A problem with a direct measure is that knowing your attitudes are being measured can distort the attitudes. They conclude that "innovative experimental methods and psychometrically sound instruments that are reliable, valid, and multidimensional" (p. 211) are needed for research on important questions on inclusion of people with disabilities. However, the authors discuss methodology without directly naming the instruments used in the studies cited.

Bagenstos, Samuel R. (2000) Subordination, Stigma, and "Disability." Virginia Law Review, 86(3): 397-534. A review of the legal and disability studies literature on the definition of disability. It also presents a controversial argument on the interpretation of the ADA definition of disability.

Bakke, Dave. (2000) God Knows His Name: The True Story of John Doe No. 24. Carbondale, IL: Southern Illinois University Press. A reconstruction of the life of a deaf and mute African American found on the streets in an Illinois city who was judged to be "feebleminded" and was sentenced to spend his life in the Illinois mental health system.

Banja, John D.; DeJong, Gerben. (2000) The Rehabilitation Marketplace: Economic, Values, and Proposals for Reform. Archives of Physical Medicine and Rehabilitation, 81(2): 233-40.

Bartlett, Peter. (2000) Structures of Confinement in Nineteenth-Century Asylums, using England and Ontario as a Comparative Study. International Journal of Law and Psychiatry, 23(1): 1-13.

Batavia, Andrew. (2000) Ten Years Later. The ADA and the Future of Disability Policy Americans with Disabilities: Exploring the Implications of the Law for Individuals and Institutions. Edited by L. Francis and A. Silvers; New York: Routledge Press, 283-92. The author discusses whether other disability related laws and programs conform to and are compatible with the Americans with Disabilities Act. He concludes that they are not and we must go beyond the Americans with Disabilities Act to achieve needed change in society. First, other disability programs must be brought into conformity with the Americans with Disabilities Act. As he demonstrates this is especially true of access to health care. Second, there must be some social intervention, although he rejects "extremely aggressive social policy," which will change people's negative attitudes toward persons with disabilities and will empower persons with disabilities. He presents some ideas about what can be done.

Beagan, B.L. (2000) Neutralizing Differences: Producing Neutral Doctors for (Almost) Neutral Patients. Social Science and Medicine, 51(8): 1253-65.

Beresford, Peter. (2000) What Have Madness and Psychiatric System Survivors Got to Do with Disability and Disability Studies? Disability & Society, 15(1): 167-72. The author ably presents why the field of disability studies (especially the UK social model) must deal with the question of the role of psychiatric system survivors and their relationship to disability studies.

Bigby, Chris. (2000) Moving on without Parents: Planning, Transitions and Sources of Support for Middle-Aged and Older Adults with Intellectual Disability. Sydney: Maclennan+Petty. Discusses the transition from parental care to other care in Australia and the future in terms of policy and service delivery.

Bladin, Peter F. (2000) 'The Epileptic Constitution': The Psychoanalytic Concept of Epilepsy. Journal of the History of the Neurosciences, 9(1): 94-109.

Blanck, Peter David. (editor) (2000) Employment, Disability, and the Americans with Disabilities Act: Issues in Law, Public Policy, and Research. Evanston: Northwestern University Press.

Blanck, Peter David; Millender, Michael. (2000) Before Disability Civil Rights: Civil War Pensions and the Politics of Disability in America. Alabama Law Review, 52(1): <http://www.its.uiowa.edu/law/publications/(2000)/civilwar.htm>.

Block, P. (2000) Sexuality, Fertility, and Danger: Twentieth-Century Images of Women with Cognitive Disabilities. Sexuality and Disability, 18(4): 239-54.

Bolander, Anne M.; Renning, Adair N. (2000) I Was #87: A Deaf Woman's Ordeal of Misdiagnosis, Institutionalization, and Abuse. Washington, D.C.: Gallaudet University Press. Sent to a special school for children labelled mentally retarded in 1964 at the age of six, Bolander (who was deaf) endured many years of abuse and rape because of her misdiagnosis during the time of the Great Society.

Bragg, Lois. (editor) (2000) Deaf World: A Historical Reader and Primary Sourcebook. New York: New York University Press. History, politics, and memoirs from the nineteenth century to the end of the 20th century covering topics from eugenics, lipreading, civil rights, and social integration.

Brown, Steve. (2000) Freedom of Movement. Houston: ILRU, <www.ilru.org/ilnet/files/bookshelf/freedom.txt>. A history of the independent living movement.

Brueggemann, Brenda Jo. (2000) "Writing Insight": Deafness and Autobiography. American Quarterly, 52(2): 316-21. Butcher, Anthony P. (2000) The Relative Irrelevance of Human Rights for the Care and Protection of the Mentally Ill. Australian Journal of Political Science, 35(1): 85-94. Kumari Campbell, Fiona A. (2000) Eugenics in Disguise? Law, Technologies and Negotiating the 'Problem' of Disability. The Australian Feminist Law Journal, 14(March): 55-70. Cassuto, Leonard. (2000) Oliver Sacks: The P.T. Barnum of the Postmodern World. American Quarterly, 52(2): 326-33. Cogdell, Christina. (2000) The Futurama Recontextualized: Norman Bel Geddes's Eugenic "World of Tomorrow." American Quarterly, 52(2): 193-245.

Coleman, Diane. (2000) Assisted Suicide and Disability: Another Perspective. Human Rights Magazine, 27(1, Winter), <www.abanet.org/irr/hr/winter00humanrights/colemand.html>.

Coleman, James E., Jr. (2000) Thanks to Two Friends of the Constitution. Human Rights Magazine, 27(1, Winter): <www.abanet.org/irr/hr/winter00humanrights/colemanje.html>.

Crisp, Ross. (2000) A Qualitative Study of the Perceptions of Individuals with Disabilities Concerning Health and Rehabilitation Professionals. Disability & Society, 15(2): 355- 67.

Crutchfield, Susan; Epstein, Marcy (editors). (2000) Points of Contact: Disability, Art, and Culture. Ann Arbor The: University of Michigan Press. Focuses on the intersection of the arts and disability.

Dickinson, H. (2000) Idiocy in Nineteenth-Century Fiction Compared with Medical Perspectives of the Time. History of Psychiatry, 11(43): 291-310.

Edwards, Claire. (2000) Inclusion in Regeneration: A Place for Disabled People? Urban Studies, 38(2): 267-86.

Erevelles, Nirmala. (2000) Educating Unruly Bodies: Critical Pedagogy, Disability Studies, and the Politics of Schooling. Educational Theory, 50(1): 25-47.

Estes, Yolanda; Farr, Arnold Lorenzo; Smith, Patricia; Smyth, Clelia. (2000) Marginal Groups and Mainstream American Culture. Lawrence: University Press of Kansas. Includes people with disabilities among the marginalized groups.

Fee, Dwight. (editor) (2000) Pathology and the Postmodern: Mental Illness as Discourse and Experience. Thousand Oaks, CA: Sage Publications.

Fife, Betsy L.; Wright, Eric R. (2000) The Dimensionality of Stigma: A Comparison of its Impact on the Self of Persons with HIV/AIDS and Cancer. Journal of Health and Social Behavior, 41(1): 50-67.

Francis, Leslie; Silvers, Anita. (2000) Disability Rights Today: How Far Have We Come? Human Rights Magazine, 27(1, Winter): <www.abanet.org/irr/hr/winter00humanrights /fransil.html>.

Frank, Gelya. (2000) Venus on Wheels: Two Decades of Dialogue on Disability, Biography, and Being Female in America. Berkeley: University of California Press. A "cultural biography" of Diane DeVries who was born without limbs.

Galbraith, K.M.; Dobson, K.S. (2000) The Role of the Psychologist in Determining Competence for Assisted Suicide/Euthanasia in the Terminally Ill. Canadian Psychology, 41(3): 174-83. The authors write that psychologists should help determine competency of patients who wish to commit suicide. The distinction is blurred between voluntary and involuntary euthanasia and the following sentence is in the article about the term euthanasia: "Unfortunately, the term became tainted through the association with the Nazi experiments during the 1930s."

Garland-Thomson, Rosemarie. (2000) Staring Back: Self- Representations of Disabled Performance Artists. American Quarterly, 52(2): 334-38.

Gastil, John. (2000) The Political Beliefs and Orientations of People with Disabilities. Social Science Quarterly, 81(2): 588-603.

Gerber, David A. (editor) (2000) Disabled Veterans in History. Ann Arbor: University of Michigan Press. The essays cover the role of disabled veterans in society and other things from ancient times to the present. The disabled veteran as a political category as well as a welfare object are covered.

Gilson, Stephen; DePoy, Elizabeth. (2000) Multiculturalism and Disability: A Critical Perspective. Disability & Society, 15(2): 207-18.

Gleeson, Brendan. (2000) Disability and the Open City. Urban Studies, 38(2): 251-65.

Goggin, Gerard; Newell, Christopher. (2000) Twenty-Five Years of Disabling Technologies: The Case of Telecommunications Promises. Promises: Disability and Terms of Inclusion. Edited by Mike Clear; Sydney: Federation Press, 148-58.

Gorsuch, Neil M. (2000) The Right to Assisted Suicide and Euthanasia. Harvard Journal of Law & Public Policy, 23(3): 599-710.

Hall, Randal L. (2000) William Louis Poteat: A Leader of the Progressive-Era. South Louisville: University Press of Kentucky. Poteat (1856-1938) was an educator who taught evolution and was liberal on race, child labor, and other issues, but who also advocated eugenics. Good example of the late 19th, early 20th century intellectual who discriminated against people with disabilities.

Handley, Peter. (2000) Trouble in Paradise - A Disabled Person's Right to the Satisfaction of a Self-Defined Need: Some Conceptual and Practical Problems. Disability & Society, 15(2): 313-25. The author argues that a rights based approach to the problems of people with disabilities in the United Kingdom will not work. The Disability Discrimination Act of 1995 has the "experts" ascribing what the needs of the person with a disability are. Social model theorists say that it must be self- defined needs (the person with a disability is the best expert) which are sought. The author says that the social model theorists fail to understand that no one is autonomous and everyone has some of their needs defined by others. But the author is taking about human rights in the sense of moral and legal rights and not about equal protection and due process.

Hartman, A.; DePoy, E.; Francis, C.; Gilmer, D. (2000) Adolescents with Special Health Care Needs in Transition: Three Life Histories. Social Work & Health Care, 31(4): 3-58. Uses participatory action research model.

Hawkesworth, Marian. (2000) Disabling Spatialities and the Regulation of a Visible Secret. Urban Studies, 38(2): 299-318. Hayward, Mark D.; Crimmins, Eileen M.; Miles, Toni P.; Yang, Yu.(2000) The Significance of Socioeconomic Status in Explaining the Racial Gap in Chronic Health Conditions. American Sociological Review, 65(6): 910-30. Whites live longer and have fewer chronic health conditions (including disabilities) than African Americans. Studying a sample of middle age (51-63) people the authors find that it is socioeconomic reasons which cause this difference and not health risk behaviors.

Heyer, Katharina. (2000) From Special Needs to Equal Rights: Japanese Disability Law. Asian-Pacific Law & Policy Journal, 1, <http://www.hawaii.edu/aplpj/pdfs/7-kh.pdf>. Good discussion of how the disability movement in Japan has moved from asking for special needs to be met to demanding equal rights.

Heyer, Katharina. (2000) Between Equality and Difference: The Politics of Disability in Japan. Japanstudien, 11: 105-33. A good discussion and description of the disability movement in Japan.

Higgins, Michael James; Coen, Tanya L. (2000) Streets, Bedrooms, and Patios: The Ordinariness of Diversity in Urban Oaxaca - Ethnographic Portraits of the Urban Poor, Transvestites, Discapacitados, and Other Popular Cultures. Austin: University of Texas Press. A study of the lives of marginalized groups including people with physical disabilities (los discapacitados).

Hill, Jonathan. (2000) The Use of Architects. Urban Studies, 38(2): 351-65.

Hillyard, Daniel; Dombrink, John. (2000) Dying Right: The Death with Dignity Movement. New York: Routledge.

Hine, Julian; Mitchell, Fiona. (2000) Better for Everyone? Travel Experiences and Transport Exclusion. Urban Studies, 38(2): 319-32.

Holburn, Steve (2000) New Paradigm for Some, Old Paradigm for Others. Mental Retardation, 38(6): 530-32.

Humphrey, Jill C. (2000) Researching Disability Politics, Or, Some Problems with the Social Model in Practice. Disability & Society, 15(1): 63-85. The UK social model can be interpreted in a way which excludes some disabilities and the persons with them feel separated out. In addition it suffers from a distrust of academics and especially a non-disabled researcher.

Hunter, Larry W. (2000) What Determines Job Quality in Nursing Homes? Industrial & Labor Relations Review, 53(3): 463-81.

Hyder, Adnan A.; Morrow, Richard H. (2000) Applying Burden of Disease Methods in Developing Countries. American Journal of Public Health, 90(8): 1235-40. Uses a measure (HeaLY, healthy life year which is similar to DALY) to estimate the "burden" of disease and disability.

Imrie, Rob. (2000) Barriered and Bounded Places and the Spatialities of Disability. Urban Studies, 38(2): 231-37.

Imrie, Rob. (2000) Disabling Environments and the Geography of Access Policies and Practices. Disability & Society, 15(1): 5- 24. The author points out that the lives of people with disabilities are effected by where they live. He points to considerable published evidence that education policies and practices, housing resources, and accessible transportation vary from location to location. Therefore, he writes, geographic and/or spatial terms are important to researching and understanding the experience of disability.

Imrie, Rob; Hall, Peter. (2000) An Exploration of Disability and the Development Process. Urban Studies, 38(2): 333-50.

Jackson, C. (2000) Waste and Whiteness: Zora Neale Hurston and the Politics of Eugenics. African American Review, 34(4): 639-60.

Janicki, M.; Ansello, E. (2000) Community Support for Aging Adults with Lifelong Disabilities. Baltimore: Brookes Publishing Co. Presents perspectives and service designs.

Jordan, Thomas E. (2000) Down's (1866) Essay and Its Sociomedical Context. Mental Retardation, 38(4): 322-29.

Kaufert, P.A. (2000) Health Policy and the New Genetics. Social Science and Medicine, 51(6): 821-29.

Kenworthy, John; Whittaker, Joe. (2000) Anything to Declare? The Struggle for Inclusive Education and Children's Rights. Disability & Society, 15(2): 219-31. This article give clear examples of how the fight for inclusive education in the United Kingdom needs the ideas of due process and equal protection.

Kerr, Susan. (2000) The Application of the Americans with Disabilities Act to the Termination of the Parental Rights of Individuals with Mental Disabilities. The Journal of Contemporary Health Law and Policy, 16(2): 387-426.

Kitchin, Rob. (2000) Disability, Space and Society. Sheffield, UK: Geographical Association. A school text for students 16 to 19 using the social model of disability. It is intended for the UK geography school curriculum. It links geography and disability studies showing how geography can disable people and encouraging the use of the geography context to study discrimination.

Kitchen, Rob. (2000) The Researched Opinions on Research: Disabled People and Disability Research. Disability & Society, 15(1): 25-48. In his sample of 35 persons with a range of disabilities, the author found that they (like many academics with disabilities) wanted inclusive and action based research strategies which saw people with disabilities not just as subjects, but importantly as consultants and partners.

Kitchin, Rob; Law, Robin. (2000) The Socio-Spatial Construction of (In)accessible Public Toilets. Urban Studies, 38(2): 287-98.

Kitchin, Rob; Wilton, Rob (editors). (2000) Disability, Geography and Ethics [special issue]. Ethics, Place and Environment, 3(1): 61-102. Contents: Rob Kitchin and Rob Wilton, Introduction; Brendan Gleeson, Enabling Geography: Exploring a New Political-Ethical Ideal; Vera Chouinard, Getting Ethical: For Inclusive and Engaged Geographies of Disability; Isabel Dyck, Putting Ethical Research into Practice: Issues of Context; Deborah Metzel, Research with the Mentally Incompetent: The Dilemma of Informed Consent; Rob Wilton, `Sometimes it's okay to be a spy': Ethics and Politics in Geographies of Disability; Eric Laurier and Hester Parr, Emotions and Interviewing in Health and Disability Research.

Kleege, Georgina. (2000) Helen Keller and "The Empire of the Normal." American Quarterly, 52(2): 322-25.

Kliewer, Christopher; Biklen, Douglas. (2000) Democratizing Disability Inquiry. Journal of Disability Policy Studies, 102): 186-206. In the context of increased demands by people with disabilities for their rights, the authors propose that participatory democracy prevail in disability research bringing in people with disabilities as major actors and they demonstrate how fruitful and necessary this change is by discussing research in facilitated communication.

Knight, Myra Gregory. (2000) Issues of Openness and Privacy: Press and Public Responses to Betty Ford's Breast Cancer. American Journalism, 17(1): 53-72.

Knox, Marie; Mok, Magdalena; Parmenter, Trevor R. (2000) Working with the Experts: Collaborative Research with People with an Intellectual Disability. Disability and Society, 15(1): 49-62.

Koch, Tom. (2000) Life Quality vs the `Quality of Life': Assumptions Underlying Prospective Quality of Life Instruments in Health Care Planning. Social Science and Medicine, 51(3): 419-27.

Koch, Tom. (2000) The Illusion of Paradox: Commentary on Albrecht, et al. "The Disability Paradox: High Quality of Life Against All Odds". Social Science & Medicine, 50(6): 757-60.

Krentz, Christopher (editor). (2000) A Mighty Change: An Anthology of Deaf American Writing, 1816-1864. Washington, D.C.: Gallaudet University Press.

Kumari Campbell, Fiona A. (2000) Eugenics in Disguise? Law, Technologies and Negotiating the `problem of disability.' The Australian Feminist Law Journal, 14(March): 55-70.

Lakoff, Andrew. (2000) Adaptive Will: The Evolution of Attention Deficit Disorder. Journal of the History of the Behavioral Sciences, 36(2): 149-69.

Lee, Soo-Kyung; Sobal, Jeffery; Frongillo Jr., Edward A. (2000) Acculturation and Health in Korean Americans. Social Science & Medicine, 51(2): 159-74.

Lin, G. (2000) Regional Assessment of Elderly Disability in the U.S. Social Science & Medicine, 50(7/8): 1015-24.

Linton, Simi. (2000) Trans-Atlantic Commerce. Disability & Society, 15(4): 699-703. An invited comment about the complaint in Colin Barnes' Disability Studies: New or Not So New Directions (Disability & Society, 1999, 14: 577-80) that disability studies scholars in the US ignore the contributions of those in the UK and that in the US disability studies is impairment specific. Linton says that she and Barnes are evidently not reading the same works because US scholars do cite UK scholars and that maybe Barnes has been reading work in medicine and rehabilitation because US scholars' work is not impairment specific. Linton's piece is a good rejoinder to Barnes.

Llewellyn, A.; Hogan, K. (2000) The Use and Abuse of Models of Disability. Disability & Society, 15(1): 157-65. Focusing exclusively on the field of developmental psychology of children with physical disabilities the authors discuss the medical model, the social model, systems theory, and the transactional model. They make some good general points: models are neither true nor false, but rather are aids in clinical activities and in research.

Longmore, Paul K.; Goldberger, David. (2000) The League of the Physically Handicapped and the Great Depression: A Case Study in the New Disability History. Journal of American History, 87(3): 888-922. Good discussion of the objectives and the goals of what some say is the beginning of the disability movement.

Longmore, Paul K.; Umansky, Lauri (editors). (2000) The New Disability History: American Perspectives. New York: New York University Press. Disability was present from the beginning in US society and culture, but historians ignored it. This volume combines historical evidence with disability studies exploring the meaning of disability in US history. Table of Contents: Introduction, Paul K. Longmore and Lauri Umansky, Disability History: From the Margins to the Mainstream; Part I: Uses and Contests; Douglas C. Baynton, Disability and the Justification of Inequality in American History; R.A.R. Edwards, `Speech Has An Extraordinary Humanizing Power': Horace Mann and the Problem of Nineteenth-Century American Deaf Education; Hannah Joyner, `This Unnatural and Fratricidal Strife': A Family's Negotiation of the Civil War, Deafness, and Independence; Natalie A. Dykstra, `Trying to Idle': Work and Disability in The Diary of Alice James; Part II: Redefinitions and Resistance; Brad Byrom, A Pupil and A Patient: Hospital-Schools in Progressive America; John Williams-Searle, Cold Charity: Manhood, Brotherhood, and the Transformation of Disability, 1870-1900; Catherine J. Kudlick, The Outlook of The Problem and the Problem with The Outlook: Two Advocacy Journals Reinvent Blind People in Turn-of-the-Century America; Susan Burch, Reading Between the Signs: Defending Deaf Culture in Early Twentieth Century America; K. Walter Hickel, Medicine, Bureaucracy, and Social Welfare: The Politics of Disability Compensation for American Veterans of World War I; Kim Nielsen, Helen Keller and the Politics of Civic Fitness; Part III: Images and Identities; Janice A. Brockley, Martyred Mothers and Merciful Fathers: Exploring Disability and Motherhood in the Lives of Jerome Greenfield and Raymond Repouille; David A. Gerber, Blind and Enlightened: The Contested Origins of the Egalitarian Politics of the Blinded Veterans Association; Rosemarie Garland-Thomson, Seeing the Disabled: Visual Representations of Disabled People in Modern American Popular Culture; Richard K. Scotch, American Conceptions of Disability Policy in the Twentieth Century.

Luhrmann, T.M. (2000) Of Two Minds: The Growing Disorder in American Psychiatry. New York: Alfred A. Knopf. Discusses the conflict in psychiatry between the biomedical model and the talk model. The biomedical model, encouraged by managed care, reinforces the professional image of psychiatrists.

Lupton, D.; Seymour, W. (2000) Technology, Selfhood and Physical Disability. Social Science and Medicine, 50(12): 1851- 62.

Mactavish, J.; Mahon, M.; Lutfiyya, Z. (2000) I Can Speak for Myself: Involving Individuals with Intellectual Disabilities as Research Participants. Mental Retardation, 38: 216-27.

Malvern, David; Skidmore, David. (2000) Measuring Value Consensus Among Teachers in Respect of Special Educational Needs. Educational Studies, 27(1): 17-29.

Mangoud, Abdallah; Albar, Adan A.; al-Almaei, Sameeh; Hanif, Mohammed. (2000) In Comparison: A Study of the Competence of Nurses and Physicians in Primary Care Practice. International Journal of Public Administration, 23(4): 461-78.

Manning, Jeffrey S. (2000) Are Insurance Companies Liable Under the Americans with Disabilities Act? California Law Review, 88(2): 607-52.

Martin, Jack K.; Pescosolido, Bernice A.; Tuch, Steven A. (2000) Of Fear and Loathing: The Role of `Disturbing Behavior', Labels, and Causal Attributions in Shaping Public Attitudes Toward Persons with Mental Illness. Journal of Health and Social Behavior, 41(2): 208-23.

Mayerson, Arlene B.; Mayer, Kristan S. (2000) Defining Disability in the Aftermath of Sutton: Where Do We Go from Here? Human Rights Magazine, 27(1), Winter, <www.abanet.org/irr/hr/winter00humanrights/mayerson.html>.

McColl, Mary Ann; Bickenbach, Jerome; Yealland, Brian. (2000) Changes in Spiritual Beliefs After Traumatic Disability. Archives of Physical Medicine and Rehabilitation, 81(6): 817-23.

McDonagh, P. (2000) Diminished Men and Dangerous Women: Representations of Gender and Learning Disability in Early- and Mid-Nineteenth-Century Britain. British Journal of Learning Disabilities, 28(2): 49-53.

McFarland-Icke, Bronwyn, Rebekah. (2000) Nurses in Nazi Germany: Moral Choice in History. Princeton: Princeton University Press. A study of nurses who were a part of the Nazi program to euthanize people with mental and physical disabilities.

McGilloway, Sinead; Donnelly, Michael. (2000) Work, Rehabilitation and Mental Health. Journal of Mental Health, 9(2): 199-210.

McVilly, Keith R.; Burton-Smith, Rosanne M.; Davidson, John A. (2000) Concurrence Between Subject and Proxy Ratings of Quality of Life for People with and without Intellectual Disabilities. Journal of Intellectual & Developmental Disability, 25(1): 19-40.

Melse, Johan M.; Essink-Bot, Marie-Louise; Kramers, Pieter G.; Hoeymans, Nancy. (2000) A National Burden of Disease Calculation: Dutch Disability-Adjusted Life-Years. American Journal of Public Health, 90(8): 1241-47. Concludes that DALYs can be used effectively in West European countries to determine the "burden" of disease and disability.

Midelfort, H.C. Erik. (2000) A History of Madness in Sixteenth-Century Germany. Stanford: Stanford University Press.

Miles, M. (2000) Disability on a Different Model: Glimpses of an Asian Heritage. Disability & Society, 15(4): 603-18.

Miles, M. (2000) Signing in the Seraglio: Mutes, Dwarfs and Jestures at the Ottoman Court 1500-1700. Disability and Society, 15(1): 115-34.

Mitchell, David T. (2000) Body Solitaire: The Singular Subject of Disability Autobiography. American Quarterly, 52(2): 311-15.

Mitchell, David T.; Snyder, Sharon L. (editors). (2000) Narrative Prosthesis: Disability and the Dependencies of Discourse. Ann Arbor: The University of Michigan Press. Develops a narrative theory of the continued use of disability as a way to characterize in literature and in film. Other marginalized characteristics are usually ignored, but not disability.

Mostert, M.P.; Crockett, J.B. (2000) Reclaiming the History of Special Education for More Effective Practice. Exceptionality, 8(2): 133-43.

Murphy, Kevin P.; Molnar, Gabriella E.; Lankasky, Kathleen. (2000) Employment and Social Issues in Adults With Cerebral Palsy. Archives of Physical Medicine and Rehabilitation. 81(6): 807-11.

Neumann, Peter; Uhlenkueken, Christoph. (2000) Assistive Technology and the Barrier-free City: A Case Study from Germany. Urban Studies, 38(2): 367-76.

Nosek, Margaret A. (2000) Overcoming the Odds: The Health of Women With Physical Disabilities in the United States. Archives of Physical Medicine and Rehabilitation, 81(2): 135-38. Onwuteaka-Philipsen, Bregje D.; van der Wal, Gerrit; van der

Maas, Paul J. (2000) Consultation with Another Physician on Euthanasia and Assisted Suicide in the Netherlands. Social Science & Medicine, 51(3): 429-38.

Osgood, Robert L. (2000) For "Children Who Vary from the Normal Type": Special Education in Boston, 1838-1930. Washington, D.C.: Gallaudet University Press. Examines the Boston school system as both the typical and a national leader of this time. Programs for children with special needs emerged and evolved.

Packer, T.L.; Iwasiw, C.; Metrofanova, N. (2000) Attitudes to Disability of Russian Occupational Therapy and Nursing Students. International Journal of Rehabilitation Research, 23(1): 39-48.

Palmer, Larry I. (2000) Endings and Beginnings: Law, Medicine, and Society in Assisted Life and Death. Westport, CT: Praeger Publishers. The fields of science and law can not resolve questions of abortion, euthanasia and assisted suicide.

Pangman, Verna C.; Seguire, Marilyn. (2000) Sexuality and the Chronically Ill Older Adult: A Social Justice Issue. Sexuality and Disability, 18(1): 49-60.

Parens, Erik; Asch, Adrienne (editors). (2000) Prenatal Testing and Disability Rights. Washington, DC: Georgetown University Press. Includes a discussion on the question of whether prenatal testing for disability supports discrimination on the basis of a disability.

Paxton, Michael. (2000) What's in a Name? Access, 2(4, August/September): 22-25. The author tries to use the impairment version of the disability paradigm to explain disability, but he fails to follow through and ends up mainly discussing terminology.

Perske, Robert. (2000) Deception in the Interrogation Room: Sometimes Tragic for Persons With Mental Retardation and Other Developmental Disabilities. Mental Retardation, 38(6): 532-46.

Peter, Dimity. (2000) Dynamics of Discourse: A Case Study Illuminating Power Relations in Mental Retardation. Mental Retardation, 38(4): 354-62.

Petersilia, Joan (2000) Invisible Victims: Violence Against Persons with Developmental Disabilities. Human Rights Magazine, 27(1), Winter, <www.abanet.org/irr/hr/winter00humanrights/ petersilia.html>.

Pfeiffer, David. (2000) The Devils are in the Details: The ICIDH2 and the Disability Movement. Disability and Society, 15(7): 1079-82. Using the medical model of disability which is based on an erroneous ontology which encourages eugenics, the World Health Organization, the World Bank, and other entities continue to push the ICIDH and the ICIDH-2 which is a threat to the existence of people with disabilities across the world.

Pfeiffer, David. (2000) The Disability Paradigm. Disability Policy: Issues and Implications for the New Millennium - A Report on the 21st Mary E. Switzer Memorial Seminar, Held September 1999 edited by L. Robert McConnell and Carl E. Hansen; Alexandria, VA: National Rehabilitation Association, 81-82. Rejecting the social constructionist and oppressed minority models, a paradigm must be adopted which says that disability exists when discrimination is encountered. Equal protection and due process is a remedy for discrimination. Disability policy today is largely a failure and seen as terribly expensive and not always the morally correct thing to do. Until professionals, providers, family members, and policy makers recognize that people with disabilities have the right to equal protection and due process and have the right to be a part of the process, disability policy will remain a failure. Nothing about us without us.

Read, Janet. (2000) Disability, the Family and Society: Listening to Mothers. Buckingham: Open University Press. Analyzes how mothers, especially mothers with children who are disabled, mediate between their children and the often hostile world.

Reaume, Geoffrey. (2000) Portraits of People with Mental Disorders in English Canadian History. Canadian Bulletin of Medical History, 17(1-2): 93-126.

Reinders, Hans S. (2000) The Future of the Disabled in Liberal Society: An Ethical Analysis. South Bend: University of Notre Dame Press. Analyzes the relationship between the ideal of full inclusion in society of people with disabilities and the diagnostic and therapeutic uses of genetic technology.

Reiss, Steven. (2000) A Mindful Approach to Mental Retardation. The Journal of Social Issues, 56(1): 65-80.

Riddick, Barbara. (2000) An Examination of the Relationship Between Labelling and Stigmatisation with Special Reference to Dyslexia. Disability & Society, 15(4): 653-67. An extensive discussion of labelling and stigma as applied to people with disabilities with special reference to dyslexia.

Rimmer, James H.; Rubin, Stephen S.; Braddock, David. (2000) Barriers to Exercise in African American Women With Physical Disabilities. Archives of Physical Medicine and Rehabilitation, 81(2): 182-88.

Rock, M. (2000) Discounted lives? Weighing Disability When Measuring Health and Ruling on `Compassionate' Murder. Social Science and Medicine, 51(3): 407-18.

Russell, Marta. (2000) Backlash, the Political Economy, and Structural Exclusion. Berkeley Journal of Employment and Labor Law, 21(1): 335-66.

Schneider, Carl E. (editor). (2000) Law at the End of Life: The Supreme Court and Assisted Suicide. Ann Arbor: University of Michigan Press. Discusses laws prohibiting assisted suicide by physicians and that they may be constitutional.

Schnittker, Jason; Freese, Jeremy; Powell, Brian. (2000) Nature, Nurture, Neither, Nor: Black-White Differences in Beliefs about the Causes and Appropriate Treatment of Mental Illness. Social forces, 78(3): 1101-32.

Schur, Lisa A.; Kruse, Douglas L. (2000) What Determines Voter Turnout? Lessons from Citizens with Disabilities. Social Science Quarterly, 81(2): 571-87.

Schwartz, Carolyn E.; Springers, Mirjam A.E. (2000) Adaptation to Changing Health: Response Shift in Quality-of-Life Research. Chicago: American Psychological Association.

Scotch, Richard. (2000) Models of Disability and the Americans with Disabilities Act. Berkeley Journal of Employment and Labor Law, 21(1): 213-22. Scotch describes the socio- political construct of disability [the oppressed minority paradigm of disability] and how it is the foundation for the ADA. He then describes the conservative critique of the ADA as an economic and moral approach. He concludes that legislation and the ADA alone will not change society regarding the mistreatment of persons with disabilities.

Scott, K.M.; Sarfati, D.; Tobias, M.I.; Haslett, S.J. (2000) A Challenge to the Cross-Cultural Validity of the SF-36 Health Survey: Factor Structure in Maori, Pacific and New Zealand European Ethnic Groups. Social Science and Medicine, 51(11): 1655-64.

Scullion, Philip. (2000) Disability as an Equal Opportunity Issue Within Nurse Education in the UK. Nurse Education Today, 20: 199-206. The author presents the case that disability must be treated in nursing education as race and similar things are considered. It is a question of discrimination in the same way.

Seale, C. (2000) Changing Patterns of Death and Dying. Social Science and Medicine, 51(6): 917-30.

Selden, Steven. (2000) Eugenics and the Social Construction of Merit, Race, and Disability. Journal of Curriculum Studies, 32(2): 235-52.

Seymour, J.E. (2000) Negotiating Natural Death in Intensive Care. Social Science and Medicine, 51(8): 1241-52.

Shang, Xiaoyuan. (2000) Bridging the Gap Between Planned and Market Economies: Employment Policies for People with Disabilities in Two Chinese Cities. Disability and Society, 15(1): 135-56.

Sharp, Keith; Earle, Sarah. (2000) Assessment, Disability and the Problem of Compensation. Assessment & Evaluation in Higher Education, 25(2): 191-200.

Shorter, Edward. (2000). Making a Difference: The Kennedy Family and the History of Mental Retardation. Philadelphia: Temple University Press. Starting with the conditions under which people labelled mentally retarded lived before 1960 (and later), the author traces the influence which the Kennedy family (especially Joseph Sr., Jack, and Eunice) had on attitudes toward mental retardation.

Silvers, Anita; Wasserman, David. (2000) Convention and Competence: Disability Rights in Sports and Education. Society, 37(3, March-April): 63-67.

Silverstein, Robert. (2000) Emerging Disability Policy Framework: A Guidepost for Analyzing Public Policy. Iowa Law Review, 85(5): 1691-1806. An exhaustive presentation of federal disability policy and how it can be analyzed.

Sirgy, M. Joseph; Rahtz, Don R.; Underwood, Robert. (2000) A Method for Assessing Residents' Satisfaction with Community-Based Services: A Quality-of-Life Perspective. Social Indicators Research, 49(3): 279-316.

Smith, J. David. (2000) The Power of Mental Retardation: Reflections on the Value of People With Disabilities. Mental Retardation, 38(1, February 1): 70-72.

Solvang, Per. (2000) The Emergence of an Us and Them Discourse in Disability Theory. Scandinavian Journal of Disability Research, 2(1), <www.sjdr.no>. The disability experience can be analyzed by looking at the "changing importance of three discourses: (1) normality/deviance, (2) equality/ inequality, and (3) us/them." They cover, respectively, rehabilitation and integration, economic welfare and equal rights, and the basis for identity formation. The identity formation discourse is not well developed in disability theory.

Stagni, K. (2000) Newborn Screening and Parent Support Groups. Exceptional Parent, 30(10): 66-73. Discussion of the experiences of several families with children born with metabolism disorders now detectable with newborn screening and parent support groups.

Stefan, Susan. (2000) Unequal Rights: Discrimination Against People With Mental Disabilities and the Americans With Disabilities Act. Chicago: American Psychological Association.

Steineman, Margaret G.; Ross, Richard N.; Granger, Carl V. (2000) A Functional Diagnostic Complexity Index for Rehabilitation Medicine: Measuring the Influence of Many Diagnoses on Functional Independence and Resource Use. Archives of Physical Medicine and Rehabilitation, 81(5): 549-57.

Stiker, Henri-Jacques. (2000) A History of Disability. Translated by William Sayers; Ann Arbor: University of Michigan Press. A history of the responses to persons with disability in Western society. CONTENTS: 1. Introduction; 2. The Bible and Disability: The Cult of God; 3. Western Antiqutiy: The Fear of Gods; 4.The System(s) of Charity; 5. The Classical Centuries: The Chill; 6. The Birth of Rehabilitation.

Stroupe, Kevin; Kinney, Eleanor D.; Kniesner, Thomas J.J. (2000) Does Chronic Illness Affect the Adequacy of Health Insurance Coverage? Journal of Health Politics, Policy and Law, 25(2): 309-42.

Swain, John; French, Sally. (2000) Towards an Affirmation Model of Disability. Disability & Society, 15(4): 569-82. Using the positive experiences of people with disabilities and the emerging culture of disability, the authors reject the tragic view of disability and set forth the outlines of an affirmative model of disability.

Teasell, Robert W.; McRae, Marc P.; Finestone, Hillel M. (2000) Social Issues in the Rehabilitation of Younger Stroke Patients. Archives of Physical Medicine and Rehabilitation, 81(2): 205-209.

Thomson, M. (2000) Constituting Citizenship: Mental Deficiency, Mental Health and Human Rights in Interwar Britain. Clio Medica, 60: 231-50.

Thurlow, M.L.; House, A.L.; Scott, D.L.; Ysseldyke, J.E. (2000) Students with Disabilities in Large-Scale Assessments: State Participation and Accommodation Policies. Journal of Special Education, 34(3): 154-63. Analysis of state policy on participation in district and state assessments and accommodations provided for students with disabilities.

Titchkosky, Tanya. (2000) Disability Studies: The Old and the New. Canadian journal of sociology, 25(2): 197-224.

Todorov, Alexander. (2000) Context Effects in National Health Surveys: Effects of Preceding Questions on Reporting Serious Difficulty Seeing and Legal Blindness. The Public Opinion Quarterly, 64(1): 65-76.

Todorov, Alexander; Kirchner, Corinne. (2000) Bias In Proxies' Reports of Disability: Data from the National Health Interview Survey on Disability. American Journal of Public Health, 90(8): 1248-53. Using data from the National Health Interview Survey on Disability the authors report that proxies under reported disabilities in the 18-64 years category and over reported disabilities in the 65 and older category. Proxie reports bias disability estimates.

Van Ryn, M.; Burke, J. (2000) The Effect of Patient Race and Socio-Economic Status on Physicians' Perceptions of Patients. Social Science and Medicine, 50(6): 813-28.

Walker, Robert. (2000) Learning If Policy Will Work: The Case of New Deal for Disabled People. Policy Studies, 21(4): 313- 32.

Walkup, J. (2000) Disability, Health Care, and Public Policy. Rehabilitation Psychology, 45(4): 409-22. Psychologists must know about the social, political, and institutional values which shape health care and related policy if they expect to participate in the structuring of services provided to people with disabilities.

Walsh, Kevin K.; Hammerman, Susan; Krupka, Patricia. (2000) Caring for People With Developmental Disabilities: Survey of Nurses About Their Education and Experience. Mental Retardation, 38(1, February 1): 33-41.

Weijers, I. (2000) Educational Initiatives in Mental Retardation in Nineteenth-Century Holland. History of Education Quarterly, 40(4): 460-76.

Westby, C. (2000) Who Are Adults with Learning Disabilities and What Do We Do About Them? Topics in Language Disorders, 21(1): 1-14. Covers the legal rights and identification of young adults in the work place and in post-secondary education.

Williams, A.K. (2000) `A Terrible and Very Present Danger': Eugenic Responses to the `Feebleminded' in New South Wales 1900 to 1930. Proceedings of the (2000) History and Sociology of Eugenics Conference, Newcastle, 297-305.

Wright, Eric R.; Gronfein, William P.; Owens, Timothy J. (2000) Deinstitutionalization, Social Rejection, and the Self- Esteem of Former Mental Patients. Journal of Health and Social Behavior, 41(1): 68-90.

Copyright (c) 2003 David Pfeiffer

Volume 1 through Volume 20, no. 3 of Disability Studies Quarterly is archived on the Knowledge Bank site; Volume 20, no. 4 through the present can be found on this site under Archives.

Beginning with Volume 36, Issue No. 4 (2016), Disability Studies Quarterly is published under a Creative Commons Attribution-NonCommercial-NoDerivatives license unless otherwise indicated. 

Disability Studies Quarterly is published by The Ohio State University Libraries in partnership with the Society for Disability Studies.

If you encounter problems with the site or have comments to offer, including any access difficulty due to incompatibility with adaptive technology, please contact libkbhelp@lists.osu.edu.

ISSN: 2159-8371 (Online); 1041-5718 (Print)