INTRODUCTION TO THE SYMPOSIUM
Russell Shuttleworth holds a BA and MA in Anthropology from California
State University, Sacramento, a Master's Degree in Social Work from San
Francisco State University, and a Ph.D. in Medical Anthropology from the
University of California, San Francisco Berkeley. He has worked for many
years as a personal assistant for disabled men. For his dissertation,
he conducted ethnographic fieldwork in the East San Francisco Bay Area
with men with cerebral palsy on their search for sexual intimacy. Dr.
Shuttleworth is currently an Ed Robert's Postdoctoral Fellow in Disability
Studies at the University of California, Berkeley where he co teaches
the course Anthropology and Disability. He also teaches the innovative
course Disability and Sexuality at San Francisco State University. Dr.
Shuttleworth has published widely in the areas of disability studies,
disability and sexuality studies and the anthropology of disability.
Linda Mona is a licensed clinical psychologist who has conducted research
and lectured on disability related topics around the country for the past
13 years. Dr. Mona has worked in a variety of settings conducting both
clinical work and research. Most of her clinical and research interests
have focused on sexuality and people with disabilities. She obtained her
BA in psychology from UCLA and both her masters and doctoral degrees in
clinical psychology at Georgia State University. She completed both internship
and postdoctoral work at the VA Palo Alto Healthcare System. Dr. Mona
has advocated for the inclusion of disability status in university diversity
curriculum and has been the energy behind positive changes for university
students with disabilities within academic, administrative, and service
domains. She has received national recognition by the American Psychological
Association, the Association on Higher Education and Disability, and the
Society for the Scientific Study of Sexuality for her research and service
related work focusing upon persons with disabilities. Furthermore, Dr.
Mona has published her work in numerous academic publications. She worked
at the World Institute on Disability as a research associate for over
two years where she conducted disability policy research and is advocated
for disability rights at the local, state, and national levels. Dr. Mona
also worked as Visiting Assistant Professor at Pacific Graduate School
of Psychology where she taught Cross Cultural issues in psychology and
supervised Students' clinical work. Outside of her academic and clinical
roles, Dr. Mona works as a disability content consultant with a variety
of internet companies. Currently, Dr. Mona is a Staff Psychologist with
the VA Long Beach HealthCare System where she works as a rehabilitation
psychologist within the spinal cord injury service.
DISCRIMINATION, SEXUALITY AND PEOPLE WITH SIGNIFICANT DISABILITIES: ISSUES
OF ACCESS AND THE RIGHT TO SEXUAL EXPRESSION IN THE UNITED STATES
Holly Wade is a doctoral candidate in the joint doctoral program in special
education at University of California, Berkeley and San Francisco State
University. She is currently Board president for the Committee on Sexuality,
a non profit organization that advocates for people and policy around
sexuality issues for people with developmental disabilities.
ADVENTURES IN CHILD-REARING: THE SEXUAL LIFE OF A CHILD GROWING UP WITH
DOWN SYNDROME
Susan Fitzmaurice began her interest in disability studies with a series
of small gray easily overlooked biographies in her elementary school that
included Helen Keller, Dorothea Dix, Susan B. Anthony, and Jane Adams.
These women inspired her to spend thousands of hours volunteering her
time with numerous disability-focused organizations. She began in 1968
as a candystriper at the age of fourteen with the infamous Plymouth State
Home and Training School on a ward for children labeled profoundly and
multiply handicapped that was considered a model of progressive thinking
for its time. Susan obtained her B.Ph. in Interdisciplinary Studies in
Societal Realities from Thomas Jefferson College in 1975, a B.A. in Psychology
from Grand Valley State University in 1998, and a M.S. in Rehabilitation
Counseling, with a substantial added focus on Disability Studies, from
Syracuse University in 2001. Currently, she acts as the Americans with
Disabilities Act coordinator for the city of Dearborn promoting the full
integration and participation of persons with disabilities in all areas
of economic, political, and community life. Her son, Teddy Fitzmaurice,
began his education in Ann Arbor as one of the first official inclusion
students in Michigan. He has been a participating member of Not Dead Yet
and Self-Advocates Becoming Empowered. He is looking forward to his high
school graduation in 2003.
DOING THE WILD THING: SUPPORTING AN ORDINARY SEXUAL LIFE FOR PEOPLE WITH
INTELLECTUAL DISABILITIES
Carol Hamilton (BA, MEd) is a part time Ph.D. student enrolled in the
School of Social Work and Social Policy, Massey University, New Zealand.
She also works in the disability field as a trainer of Community Support
Workers.
WHOSE SEX IS IT ANYWAY?: FREEDOM OF EXPLORATION AND EXPRESSION
OF SEXUALITY OF AN INDIVIDUAL LIVING WITH BRAIN INJURY IN A SUPPORTED
INDEPENDENT LIVING ENVIRONMENT
Karen Shue, Ph. D., C.Psych. is a psychologist practicing in neuropsychology
and brain injury rehabilitation. She is President and Director of Learning
at ABI Possibilities Inc., a provider of long-term living support services.
Ana Flores, O.T. Reg. (Ont.) is an Occupational Therapist and Director
of Member Services at ABI Possibilities Inc.
INCORPORATING SEXUAL SURROGACY INTO THE ONTARIO DIRECT FUNDING PROGRAM
Born and raised in Canada, Lawrence Shapiro is a student in the Disability
Studies Program at Ryerson University in Toronto, Ontario. He has conducted
presentations on disability at both the Society of Disability Studies
Conference recently held in Oakland, California, and also at the first
Queer Disability Conference held at San Francisco State University last
spring. He is currently researching material for a documentary film on
issues faced by women with disabilities in the developing world.
SEX, DISABILITY AND MOTHERHOOD: ACCESS TO SEXUALITY FOR DISABLED MOTHERS
Corbett Joan O'Toole is the Director of the Disabled Women's Alliance
which provides training and organizes conferences on women and disability.
Author of numerous articles in peer reviewed journals, including Journal
of Lesbian Health, Peabody Journal of Education, Sexuality and Disability,
and Disability Studies Quarterly. She recently co-authored a chapter on
disabled lesbian health for the forthcoming medical textbook, Women with
Disabilities: A Comprehensive Guide to Care edited by Dr. Sandra Welner.
LEISURE: A PATHWAY TO LOVE AND INTIMACY
David Howard, M.S.W., C.T.R.S. is a doctoral student in the Rehabilitation
Science Ph.D. program at the University of Florida's College of Health
Professions. He received his undergraduate and Masters degrees from the
University of Utah in Therapeutic Recreation and clinical Social Work
respectively.
Mary Ellen Young, Ph.D., C.R.C. is an Assistant Professor, Department
of Rehabilitation Counseling, College of Health Professions, University
of Florida, Gainesville, Florida. She was previously an Assistant Professor
Center for Research on Women with Disabilities, Department of Physical
Medicine and Rehabilitation, Baylor College of Medicine, and Associate
Director, Brain Injury Research Center, The Institute for Rehabilitation
and Research, Houston, Texas.
FREAK FUCKER: STEREOTYPICAL REPRESENTATIONS OF SEXUALITY IN BRITISH DISABILITY
ART
From 1993-2000 Ronda Gowland worked as a personal assistant for disabled
people. Subsequently, this led to further research in 1999 examining the
'Representations of Disability in Art and Literature for her BA Honours
'Art and Design History' degree dissertation at the Southampton Institute
of Higher Education, England. Presently working as Programme Assistant
and access representative for the John Hansard Gallery Education Department
at the University of Southampton, she is currently studying for a Masters
degree in Arts Management at the University of Portsmouth.
"SOMETHING IN YOUR BELLY" FANTASY, DISABILITY AND DESIRE IN
MY ONE LEGGED DREAM LOVER
Kath Duncan (kmd@ozemail.com.au) is a forty-something physical freak dynamo
who works as a free-lance journalist/writer in radio, print and television.
She struggles with her resistance to most things academic although she
holds a BA (Communications) from the University of Technology in Sydney,
a BA (Hons) degree from Southern Cross University, and a post-grad certificate
in Sound from the Australian Film TV and Radio School. She gets off on
exploring edgy and taboo topics including: masturbation, death, masculinity
and housework, people who want to be disabled and a whole lot of stuff
that keeps getting her into trouble. Born with two full-length limbs and
half her left arm and right leg, Kath gets twice as much wear out of a
pair of socks.
Gerard Goggin (g.goggin@uq.edu.au) is a late thirties-something not quite
straight academic who is a Postdoctoral Research Fellow at the Centre
for Critical and Cultural Studies, University of Queensland. Gerard enjoys
subverting the dominant paradigm, pushing the envelope, queering the pitch,
and generally stirring things up. He has a forthcoming book, Digital Disability:
The Social Construction of Disability in New Media (Rowman & Littlefield)
in collaboration with Christopher Newell, University of Tasmania.
DISABLED SEX AND THE MOVIES
Leslie Harris is a journalist and copy editor in Johannesburg, South Africa.
This is an expanded version of a paper delivered at the Society for Disability
Studies conference held in June 2000 in Chicago.
FORBIDDEN WEDDING: MOVIE REVIEW
Mitchell Tepper, Ph.D. M.P.H. is Founder and President of The Sexual Health
Network and SexualHealth.com. Dr. Tepper is an internationally recognized
sexuality educator, researcher, author, and advocate dedicated to ending
the silence around issues of sexuality and disability. His years of research
at Yale University, Rutgers University, and the University of Pennsylvania
have served as the basis for numerous professional, academic, and public
presentations, articles, and chapters. Publications include: Lived Experiences
that Impede or Facilitate Pleasure and Orgasm in People with Spinal Cord
Injury; Providing Comprehensive Sexual Health Care in Spinal Cord Injury
Rehabilitation: Continuing Education and Training for Health Professionals.
He writes regularly for Love Bites, a monthly column in New Mobility magazine
and iCan.com. Dr. Tepper also serves on the editorial board of the Journal
of Sexuality and Disability; the Board of Directors of the American Association
of Sex Educators, Counselors and Therapists (AASECT); The Sexuality Information
and Education Council of the United States; and the International Society
for the Study of Women's Sexual Health (ISSWSH). He is a regular guest
lecturer at the Yale University School of Medicine. Dr. Tepper has a Master's
degree in Public Health from Yale University and a Ph.D. in Human Sexuality
Education from the University of Pennsylvania. In addition to academic
credentials, Dr. Tepper, who grew up with Crohn's Disease and acquired
a spinal cord injury at age 20, brings a lifetime of first-hand experience
with chronic illness and disability to his work.
VOICES
Lorre Leon Mendelson, CEO of en LIGHTNING Consulting, recently relocated
from the San Francisco Bay Area to Nashville, Tennessee where she works
as Advocate for Individuals with Mental Illness for Tennessee Protection
and Advocacy, Inc. Lorre is a mental health/disability advocate/activist,
educator, national presenter, and author. Her poetry and articles have
been published in the U.S., Canada and on the web including in Disability
Studies Quarterly, Special Issue: Hidden Disabilities, Volume 20, Number
3, Summer Issue 2000. Co-authored article for special issue of Women and
Therapy with a focus on anxiety disorders in the lives of women. She graduated
from High School in Washington, DC, then, moving to Colorado, obtained
a B.A. in Social Science at Colorado State University, Ft. Collins, Colorado
in 1975.
As an advocate and activist, Lorre works with full energy and enthusiasm
educating people about their rights, advocating for people with mental
illnesses, ending prejudice and discrimination, and working collaboratively
with others to achieve these goals. Lorre presents nationally on ending
hate, educating the media, voting access for people with mental illnesses
and other disabilities, successful employment for people with disabilities,
and serves as a resource on an international basis for people with OCD
and other mental illnesses. Trained by the NMHA and Ken Steele in the
Voter Empowerment Project, Lorre implemented this in Northern California
and has begun voter activities in Tennessee for people with disabilities.
As a person with PTSD, depression and OCD, Lorre is strongly committed
to education, awareness, and equal rights for people with and without
mental illness working to end the prejudice and discrimination that pervades
the social, educational, health, medical, vocational, and political structures
for people with disabilities. Lorre works with the media to provide more
accurate portrayals of people with mental illness and other disabilities
through awareness and education. She received commendations from the State
of California, Department of Rehabilitation, and SCCCED in 1997 for her
work in the community, elected by the Santa Clara County Committee for
the Employment of People with Disabilities (SCCCED) as Disability Champion
of the Year, 1997, organized and coordinated non-partisan political debate
with disability representatives from national political parties, October
2000, nominated for California Secretary of State's "Hall of Fame"
to honor voter outreach efforts going above and beyond assisting with
registering voters and encouraging voter participation, January 2001.
In 2000, spearheaded voter registration drive for the Spirit of ADA National
Torch Relay, June 17, San Francisco Bay Area and Voter Registration Volunteer
activities with the Santa Clara County Registrar of Voters office helped
increase voter registration in the year 2000 of over 35,000.
SEX, INTIMACY, AND MENTAL ILLNESS: A PERSONAL REFLECTION
Scott Snedecor has had a wide range of experiences in the mental health
field. He has been a consumer of public and private mental health services.
He has been in short and long term inpatient treatment. He is currently
working as the Consumer Liaison for Multnomah County. He has been involved
in mental health policy for about 7 years. He has served on the Regional
Acute Care Advisory Council, the Multnomah County Adult Behavioral Health
Advisory Council, the Oregon Office of Consumer Technical Assistance Advisory
Council, The Dammasch Trust Advisory Council, the Attorney General's Task
Force on Civil Commitment, the Mid-Valley Behavioral Health Care Network
Quality Council, the IPS Plus Quality Assurance Committee, and the Tri-County
Medical Transportation Advisory Board. He has written a wide number of
articles on consumer/survivor issues, which have been published locally
and nationally, including The Death of Mental Illness, Grief, Back-up;
a model for Organizing, and Creative Disengagement; a Guide for Providers.
He has been an educator for workshops on Sexuality and Mental Illness,
Consumer Empowerment in Managed Care, Organizing Your Consumer Group,
Using Psychiatric Advanced Directives, Becoming a Partner with your Prescriber,
How to Create a Drop-in Center, Medications from a Consumer Perspective,
Healthy Grieving, Using Affirmations, Consumers and Employment, and How
to be an Effective Consumer Provider. He has also been a key trainer for
the Portland Police Crisis Intervention Team, the Clackamas County Sheriff's
Deputies, and the Multnomah County Sheriff's Deputies on issues regarding
Mental Health and Law Enforcement.
Professionally in the mental health and addictions fields, Scott has
worked as an addictions counselor for adolescents, a project coordinator
of a federal experimental addictions treatment program for homeless adolescents,
a case manager for a consumer operated intensive outreach case management
project, the team leader for the same project, a program manager of a
consumer operated community mental health center, an outcomes interviewer,
a psycho-social rehabilitation specialist, a residential treatment coordinator,
a consumer technical assistance training coordinator, and a consumer affairs
specialist. He received the 2001 Mental Health Award of Excellence from
the Oregon Department of Human Services and the 2002 Garrett Smith Memorial
Award for his work as a consumer advocate.
WHO'D FUCK AN ABLEIST?
Katie F. Ball is a front line activist with twenty years experience in
the disability rights and social change movements. She is a qualified
secondary teacher, a community development worker, a wife and a mum. She
has worked in the phone sex industry and taught Politics of Disablement
at Kangan-Batman TAFE. Totally fascinated by human sexuality, Katie upholds
the right of all people with disabilities to social and sexual equality.
She has spoken at many forums and written a library-based dissertation
on the sociological analysis of sexuality and the disability rights movement.
She is bi-sexual and describes herself as a raving nymphomaniac. Katie
was featured in award-winning television documentary Untold Desires and
her photos have been published in Picture Magazine. Katie has Kugelberg
Welander Syndrome (Juvenile Spinal Muscular Atrophy) and uses an electric
wheelchair for mobility. The trauma of institutionalisation at the age
of fifteen has left her with Separation Anxiety Disorder, Generalised
Anxiety Disorder and Anxious Attachment. She lives with depression and
continues to suffer panic attacks as a result.
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